Wow, thanks! I'd join up, but I'll almost certainly grab up this month's bundle. Three really nice openers. How can they add more to the bundle now?! Things are going relatively okay for me, so I am very happy with where I stand at the moment. I got a nap in after staying up way too long (had a 20 hour and and 30+ hours awake few days, and I'm going through a side medication issue causing some havoc, but otherwise I cannot hardly complain). Okay I can complain a lot but I will not. Not helping me if I do that, and there isn't a real solution to those complaints at the time. But my girlfriend hears it a lot, and vice versa, since she has lyme, and is going through cancer stuff at the moment. Test in a week or so to check if it's gone, so hopefully good news coming up for us. I stay hopeful on all fronts, which is probably my best weapon if there is no direct way to take action otherwise, heh... ^_^
Appreciated greatly! Added you to my list of contributors, and my whitelist, and when I start my group for a few non-bundled/maybe bundled items, I'll let you know. Just an idea I have, but I'll send out some invites if the time happens - just a small temporary group I'd set up for contributors here. I'm a collector, so I have some stuff hanging around for some nice occasion. I'd like to give back a lot more, and especially to those who are super supportive in some way, since this is a personally huge PSA for me, and I get overwhelmed by the amount of attention it's gotten here. It's crazy how it continues on, but I am super glad people can at least get some info if perhaps they are in a situation where they get a tick or tick bite. Lots of comments (okay, I answer about 98% of them - so that's a factor as well), and there's always been stuff given away since the first day, as far as I am aware/recall, which is really really cool.
Anyway, I blab sometimes a little - luckily I caught myself early on! Have a nice rest of the weekend, and I am again very grateful for your contribution! :D
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I only wrote 7 words, you make me look bad :)
Had the game already, so no problem. Yeah the openers kinda make me worried about the remaining games. Last month was a little disappointing for me, but i will probably play through deus ex (w/o microtransactions) and mafia 3 as long i have some fun. So it will probably be worth it for me.
Happy to hear that you are doing okay under the circumstances. Always have the highest respect for people who can keep a positive attitude when life deals them bad cards. True, complaining doesnt solve problems, but not complaining at all isnt good either. You have to let out a little steam from time to time even though it annoys everyone a little. I wish your girlfriend the best and hope the test results will be great.
Thanks for adding, even though some other contributors and supporters here deserve a give back a lot more than me.
The awareness info about ticks is important cause many people just dont know. My mother is a nurse and originally from south korea (death by tick not uncommon there), so i was taught as i was little to never underestimate stuff like that.
Have a good one and i wish u a nice week with good news
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Great to hear that you were aware that ticks can be dangerous. Bugs in general! There's this one called... chagas (the kissing bug/beetle - something like that), and it can mess people up in a similar way to lyme sort of. Reminds me at least... Very odd.
Not sure which day the test is, but it's upcoming soon here. My lyme doc gave me some free supplements (like 6 or something) to try that were donated. Very nice of them. We're on some rough times right now in a lot of ways. Things should improve if I can keep a nice attitude. And oh yeah the complaining... can't hold it in or it can turn into a big bomb! :D I have lost my cool many a time. I did find a therapist though who really knows about some of my mental stuff, so maybe we can start working on my Autism stuff. I've got a bunch of tests still to do... and I have been at this for years. It's pretty crazy!
I wish you a good one! Thanks for all the nice words too!
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Whoa! You surprised me! I'm joking, I'm joking. Hopefully my humor is refreshing, and not the opposite!
Take care, and have a nice weekend, igel2005! I'm always very happy to see such amazing dedication from you and a couple of others who are regularly keeping the PSA infos stronger and near the top, so more might run across it if they're browsing discussions!
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I cant complain compared to other people in life. I am healthy (touch wood) and am able to enjoy all that life allows me too. The snow has finally melted in my country and it feels like spring again. Hope the weather where you are is good
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I haven't read thru all 3000+comments, but is your disease sorta like als if untreated? Or will you eventually be able to (hopefully) beat it & have a "normal" life (or as normal as you can)? Thanks for the reminder, warning, and looking out for the less informed!
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It is related, from what some can tell. Some people with ALS have lyme as well, and there were some small studies linked to mycoplasma as well... or lyme might be masking as this thing or that thing, depending on where it seems to hit. Strange how different people can have totally different symptoms. Mine is degenerative in ways, but not the same way that ALS is. I'll mostly just have bone issues early on (already have some curvature of the spine from kyphosis) and some degeneration there, and I'm not sure about the energy or fibro or pain stuff. Maybe some will be kept at bay, and others, just maintain it as best I can. Hopefully it can improve if I can find something that works in my own system.
Most likely I won't have a normal life, since it is a bit late. Caught early, chances are high that one can be fine if it's checked or somebody decides to take antibiotics in case it's lyme, etc. Not sure if it's the best method, but they really don't have anything else. After many years though, it's late stage, so I'm a bit screwed in some ways. We'll see. I have a lot of hopes for the future though, and I will not give up. A cure could be around the corner! Who really knows?
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I hope things are going fairly well overall for your week! Slowly getting to everything, but my pacing is faster than it could be, so there is always that side of things. I'm more busy than I realized!
Halfway through the week! It's going okay for me, but I had a small hiccup. Two actually. The one I will mention: I spilled coffee all over my mouse/mousepad the other day. It has almost as many buttons on it as my keyboard does... haha! Anyway, it's fine for now, and I had no sugar in coffee and it wasn't piping hot, but still pretty warm. (I almost never drink milk/cream/sugar of any types in my coffees, so that was a good thing). The power strip it hit has been drying upside down for now though and removed from operation for a little while. It's been a couple of days, so it's probably good now. A couple of the empty outlet spots had signs of liquid on the top, plus the color of coffee gave it away a little too on direction of spills.
My laptop battery charger was in there, and it got hit from the floor and outlet, so... it might be trashed. I did not let it bother me after maybe 10 or 15 minutes of letting the initial phase get out of my system and I moved along with my day without having that hanging over my head. Felt good to not allow that to have any power over the rest of things going on. Anyway, at least it didn't hit my keyboard. I almost always have it in a certain spot, but I put it down to grab something or check something else, and my placement happened to be right between my elbow and mousepad.
Continued even better energy your way. I'm always thinking... let's make this even better, and it seems to actually work on a lot of things! I tried the reverse a lot in my life too, and that works too. I think I'll take the first option if I'm going to pick one though. At least these days...
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Congrats on your positive thinking and also strength because you didn't let an accident spoil your day!
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I noticed your bump with a cold earlier, so I hope that improves for you, and isn't too horrible. Some of them can be a lot worse than others. Taking any special precautions or treating it with anything, or just kinda letting it pass by? I'm not sure if you added anything, but I figured I'd ask. Feel better soon!
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I have a bad cold, with fever, coughing, headache and a stuffed nose.
The last 2 weeks it there was no fever and all symptoms were a lot weaker, so I went to work. But starting mid-Monday at work it got worse, and late Monday evening I decided to go to the doctor yesterday. Now I'm on sick leave at least for the rest of the week and have another appointment on Friday to check my progress.
Thanks! :-)
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Yeah, it's really soon I think. Still not sure which day it was, but it will be a very big scan taking around 2 hours. One of those things we are both not wanting to know, but wanting to know, if that makes sense. It's been a rough few months, that is for sure! Modern medicine gives us more of a chance, but wow it sure is barbaric in ways! We go with what we have though - and it's definitely an improvement from when others in my family have had cancer a few decades back.
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Well, we'll see... Overall, not too horrible. I've been doing a lot worse overall the last few months, but only by a little bit mostly. Either that or I am too used to this stuff, so it's not making as much of an extra impact most of the time, or my being careful is playing a huge role. I'm still tapering off a few medications, and it's making me irritable as heck! I'm trying... not to let the bad stuff hang around, but it's a lot tougher when your own brain is against you (neurotransmitter activity is wondering where those "boosters" are going since both are regulating stuff up there - so the down-regulation is tough...). I can't out-think this one, I guess. :3
Just have to let some things roll, and try to manage any symptoms that are popping up along the way. So, that's my approach anyway for the last month or two. I cut my dosage on one in more than half - going super slow, because of a potential problem down the road with them if I just decide to quit. I think that happened before to me with anxiety meds, and wow it was one of the most drawn out nasty experiences I can remember in recent years. Instead of having anxiety/depression symptoms heightened for maybe a few days or weeks, it was years. Never stopped until I started re-treating my anxiety with medication again, unfortunately, as much as I want to take zero meds at all - still can be an attainable goal for most of my conditions aside from a few things my body simply is lacking and nothing I'd normally ingest produces those things... other ones, I hope to remove. Still, I'm taking about half the meds I was a few years ago. I think I've cut my pain herbal dosage by almost... 2/3 now also. Almost out, but I'll see how I feel coming off of a very mild dosage. It'll be a bit of a bump when I step off - no pun intended, but one that's better than if I stayed at a higher dose and wasn't so careful!
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Excellent! I guess then it does fit. Hopefully good in that particular context. I use it sparingly, but it's an ending for a lot of prayers or a response to something, sort of like, "I believe it!", or "Agreed!", in certain uplifting or spiritual-related phrasings in some of the more Christian-angled stuff I've attended at times.
I have not been in a synagogue, surprisingly! I like a lot of Jewish-related scripture though. It's very thoughtfully written in what I have examined. Really really like the Kabbalah sephirot as an example. The charts about various emanations, or whatever one would call them... A couple of other things as well; not as well studied as I would like, but that is the main one that's really stuck out in my head over time.
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Religious Jews fear G*d, so we use it a lot to show our devotion to Him.
Actually there are many male and female soldiers in the IDF who are Christians and Druze and who have enlisted to defend the State of Israel.
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... I'll never give up.. but... I'm sorry. T.T ...
I am no longer going to keep this PSA going. It violates steamgifts terms which state:
"When posting links or content, that content should not force users, encourage users through reward, or primarily exist as a traffic source for users to perform an action for promotional, commercial, or monetary benefit. Such actions include but are not limited to clicking a referral link, liking a Facebook page, following a Twitter account, joining a Steam group, completing a survey, or making a donation."
Currently, everything on steamgifts, including entering a giveaway, breaks this rule. Nobody would enter if it did not encourage users through reward. It's not guaranteed, but neither are any other types of things being flagged as "bad" vs "good".
If anybody wants to continue this thread/post, I will be more than happy to allow such a thing.
I will win. But. I can't do this... not right now. Please keep it alive in your hearts and minds - and spread awareness to others!
We are saving lives. This isn't a joke, or something fun. It's real. The horrors of lyme are real.
Never... never... never ever knew... this could happen to me or anybody else for that matter. Please. Be grateful for your own health.
Live your life strong... and do things I cannot do. Please live life for me - where I couldn't be strong enough... you can! You will succeed! Be that person I wanted to be. The person I would have been, had I not gotten sick... as one of the healthiest people around before a damn tick destroyed me... at least up to now. One moment in time. It destroyed it all...
Please never forget your health... and how important it is. We only have one life. Don't waste your chances!
Please send me a message through steam if you wish to keep this going!
A friend of mine, JerichoOfRivia mentioned a while back that I should create a post about this on Steamgifts. I sort of considered, but I didn't know if I wanted to go through with the effort. I've decided to incorporate lots of giveaways into this and try to keep it bumped here and there when I can, and I hope some people will consider doing the same. It's a rather touchy and important issue, and I didn't know really how much I wanted to go into it, or what I would say. Here's what sprung from my mind, so I hope it will get my main point across without being too much about me, but it will be mainly about me, since I am one of many suffering from this disease with no cure.
Some of you already know this, since I mention it in comments here and there, but I have lyme. I was bitten by many many ticks when I was 11 and 12 years old, during the time of some experimentation being done on mycoplasma germs about 30 miles away. I also coincidentally happen to have a very debilitating form of mycoplasma. I told doctors I was sick for many years after my body started to tell me it wasn't well, but they did not believe me. I got progressively worse as time went on, starting with neurological symptoms, progressing to nerve sensations and pain, and then overwhelming fatigue. I was told it was in my head, or that it was all due to depression. Some doctors told me I had growing pains when I was still fairly young, and others blamed it on lack of exercise. Why would they even say that, when the whole reason I was complaining is because I could not do the things I used to do?
I used to run close to five minute miles, but now I'm lucky if I can even make it upright for five minutes on my really bad and fatiguing days. Running and doing other active things outside was sort of my downfall. If I had stayed inside leading an inactive lifestyle, I wouldn't have had nearly as many chances to get bitten by ticks. I started to lose faith and trust in all doctors, since they kept ignoring me when I told them I was sick, and as all the medical professionals I saw gaslighted me into that belief, I eventually believed I was imagining it all, that it really was in my head, so I gave up for a long time. Certain things helped me over the years, and other things seemed to help, but also caused me other problems. I am surprised I lived through this, and that I continue to be as strong as I am. I might just be lucky, since it hasn't yet attacked the places where it can with others, causing death within months to a few years.
I have over twenty various conditions, most chronic and some fully systemic. Some I can slow progression by taking supplements and other things, and most have no permanent cures. Some will take constant medication, and some can be prevented to a degree, or at least masked to some extent. There have been times where I've taken over 60 pills a day. On average I'm probably about half that right now. It's very hard to live like this, and when I was healthy, I never imagined a person could feel this way, even on my worst days, or in my worst nightmares.
When somebody asks me what it is like, I explain that it is like a constant flu most of the time, but instead of being able to sleep through it as a sick person would, and having it go away in a few days, it never ends. On top of that, I have to perform and function in life while I have the flu, unlike the people that get a lot of rest. They get better. I cannot rest twenty-four hours a day, and it's pointless to do that, since my muscles would only atrophy, and it's too painful to sleep for very long periods most of the time anyway. I have a lot more symptoms constantly barraging me aside from a simple flu, but I describe it this way, since most people know what the flu is like. The other stuff is a bit more difficult to get into with somebody healthy.
I have learned a lot about living on the other side of healthy that I would never have known, had I been treated properly. I think this disease and many others it causes are ignored so much because of the fact that nobody believes you are so sick, and most minds cannot comprehend something so devastating without actually having experienced such a thing, so they have a natural form of denial about it. Many people with lyme can do things at times, so on the outside they look fine for short periods of time. Other times when nobody sees them, it may be a different story. Many times the recovery period for doing the seemingly slightest things can be quite harsh. Other times I do a lot more, and it doesn't hurt me later. Most of the time I don't notice the hurt, because I already am hurting worse all over. It's not something somebody can ever see, like a missing arm or leg, for instance. The neurological effects are the same. Mental health is a sad thing to examine in today's world. I have test results of some things showing problems, like seizure disorders, but not very much evidence, since the brain is so complex. Most tech is very new, and hard to get to without large amounts of money. I found a place to work on some of my neurological things, perhaps, but it's over two hours away. My insurance is ignored by most doctors in the area that could help because I am on government assistance since I can't work. It is a form of discrimination that is ignored by my government.
I have only some tests that can show much of anything. Lyme tests are not very accurate. Probably well over half the tests give false negatives. Some people have gotten 10+ tests showing they have zero lyme, and they "suddenly" end up with a positive one. Also, many people do not get the "bullseye rashes", possibly as low as ten to twenty percent. I never got one that I noticed, but after many tick bites, my body started acting crazy, and I had three breakouts of strep in a single month, with full body rashes at 11 or 12 years old. I have gotten 3 or 4 lyme tests so far that are equivocal, and as close as you can be without an actually considered a positive result. I am probably too far into late stage lyme to get a pure positive result, since my antibodies are too busy to show up anymore on a high level, and the lyme learns to outsmart these tests over time, as has been proven in multiple studies and scientific tests, but I am being treated based on symptoms, and my close tests together.
I am one of many that gets toyed with by medicine on an unending quest to find out the truth. Doctors seem like they are useless many times, and will not help. It's really sad when people with that much power choose to not help you, and let you suffer. Some people can get away with almost anything though, and this is especially true of people with power over whether somebody lives or dies. In many cases, if they'd just drop the all-knowing ego a bit, listen to their patient, get into action, dig a little, offer choices, and maybe believe their patients, then a difference could be made for some of these people who are sick. I was not making doctor's appointments to have a fun time, and I don't think it should be put off so lightly.
People are probably sick if they have to call a doctor. Even in the rarest of incidents where they really are hypochondriacs, this is also a sickness that needs to be examined and treated if there really isn't anything wrong. Something in fact is wrong on some core level if they are looking for medicine to help them in some way. It's a cry for help no matter how you look at it. There is no reason to completely ignore human beings who are asking for help. That's what they are supposed to be there for. I guess some forget that along the way, or something. I don't really understand the lack of compassion for others. Some responsibility and accountability would be nice from people in these powerful positions. It's on them and their conscience though. I'm glad it's not me.
I consider myself and my situation a test for others. Will they do the right thing when they have a chance to offer me something, as a sick person? Will they ignore me, when they have a chance to be there for somebody in need? What would the spiritual people of the world do in these situations? Other creatures in the world, and other tribal settings accounted for the sick, and the rest of the group would look out for them and try to make them well.
I don't think the government wants me well here, to be honest. I make them far more money being sick and on the system, as a cash cow for Big Pharma, and whoever else is profiting. It is a win win for them if I struggle, because I have to either pay up, or I die. If I got better, I'd be a direct threat to their jobs, and that's dangerous when it's somebody who has been through hell already. We lose the apprehensions that healthier people tend to have, and we know what it's like to have nothing. Many times those kinds of people take less for granted, and can do a better job, since they don't want to go back to the way it was, being miserable and having next to nothing.
I know this is getting to be a long-winded post, but I want to raise awareness about third stage lyme, and that it can indeed become chronic and wreak havoc on your entire body. I think most if not all of my current conditions probably came from lyme, and I don't want other people to end up like me. There is very little I could think of that would be worse than living a lifetime with the pain, tiredness, torment, and expenses of dealing with problems like this. I cannot work because I am too sick, but I need to get better in order to work again, and so that's where the bulk of expenses comes from. It's a catch 22.
I'm also including all the years I could have had an income, and I did not. In society, they want you to work, but if you're too sick to work, then you must get better, but if you cannot pay for treatment, then you remain sick, unable to work. It is a vicious cycle, and yet another facet of medicine I will not get into. There are even organizations like IDSA, that say chronic lyme does not exist, and people in the medical profession think highly of this organization, and they believe this garbage. It's maddening that so many people are overlooked, and considered hypochondriacs, or mental, depressed, or whatever they want to mis-label so many people that are suffering.
Enough about me. Please remember a couple of things:
Also just a disclaimer of sorts that I am no expert on removing ticks!
The information is what I've come to believe in my own experience based on the sources I read and trust most. There isn't a lot to go on with ticks/lyme.
There is a lot of bad information out there about how to remove ticks. One way that most people have access to is a pair of tweezers close to the skin, and a steady pull directly away from your body, without crushing, jerking or twisting, is best . If it's too fast or hard, you can leave the mouth parts embedded under the skin. A distressed tick can also regurgitate a lot of dangerous disease-causing germs into you if you try to use other methods to remove them, like suffocation or burning.
If you, a pet, or somebody you know gets tick bites, try to get treated with antibiotics as soon as you can. Push for at least 4 weeks, if possible as well. If your doctor will not get you at least 4 weeks of some doxycycline antibiotic by choice, find another doctor. I guess different areas have rules. I would check the rules for my area, and get the largest amount of treatment I could as early as possible. This can ruin your entire life. Not something to take lightly.
It's one of the most underfunded medical problems in my country, yet as many as 300,000 new cases spring up each year.
A quote from lymediseasechallenge.org says, "Although the number of new Lyme cases annually is staggering, there is relatively very meager support for research funding. Indeed, although the annual incidence of Lyme Disease is higher than that of breast cancer, hepatitis, colon cancer, Multiple Sclerosis, HIV/AIDS and West Nile virus in the United States, unfortunately federal funding of Lyme Disease has been extremely disproportionate. For example, Lyme Disease occurs 6 times more often annually than HIV/AIDS, yet it receives less than 1% of the funding from the National Institutes of Health compared to HIV/AIDS. Likewise, there are 141 times as many cases of Lyme Disease than West Nile virus, yet Lyme Disease receives less than half of the funding for research."
There is a lot of good information out there, and a lot of misinformation as well. There are organizations like ILADS, that I think come closer to the truth about lyme disease.
Please consider adding Lyme Disease Association to your charity list if you use HumbleBundle, Amazon (AmazonSmile), or other places you may have an option to donate to for charitable causes, if you don't really have a particular charity you are set on using. About 96% of all money that is donated here goes to causes that help spread more information and education on lyme, as well as other important missions, including finding lyme doctors for people, since a lot of lyme doctors try to stay under the radar in fear of being prosecuted for helping people with lyme. Hopefully it's okay for me to mention that, but if not I'm okay removing the organization.
Unfortunately, according to many states here, and their rules, things like Lyme shouldn't be treated with long-term antibiotics, but having acne is a different story, and long-term treatment of acne with antibiotics is okay. Doctors in many states trying to give antibiotics long-term for lyme have had their licenses revoked, and some have been jailed. It's very bad in some other countries as well, such as Australia. Just an example here, but there's something deeply corruptive at work here in the USA with double standards like the mentioned one above. Lyme can and will kill, while acne is more cosmetic. Anyway, the above mentioned charity is located in the town where my lyme doctor practices too, Jackson, New Jersey.
I found out I had lyme disease after living with my problems for over twenty years. I now have a real diagnosis. I feel liberated.
Please bump for:
The generosity of myself and others, and awareness of lyme!
Good karma!
Your own conscience, health and well-being!
To make me happy to add current giveaways!
To increase the likelihood of me adding even more giveaways at a more frequent pace!
High non-bundle giveaway chances in the future if it can get enough activity! So far not so good on the bump % - still dropping one or two non-bundles every now and then... but the % of joins vs. bumps just ain't up to snuff. Sorry, but it's kinda expensive, so just a small effort would be appreciated if you take the time to join something. Rude otherwise, IMO.
If you're feeling generous and would like to make a giveaway, this format below is awesomely appreciated!
[Superfabs Is the BEST EVER! - Level x+](http://www.steamgifts.com/giveaway/MaR10/MUSHROOMS) | your contributor name
GIVEAWAYS: (I will update this regularly, if I can, but I mainly wanted to express awareness unless something catches on).
*Let me know if you notice something that's already expired, and I'll remove, since I may not notice right away!
Thanks to D3D for this one!
Abalone (ends 1/1)
Thanks to Corran for these!
Beholder - Level 3
[Sniper Elite V2 - Level 3]](https://www.steamgifts.com/giveaway/36k15/)
Resident Evil Revelations - Level 3
Thanks to dubnio for these!
RUNNING WITH RIFLES - Level 4+
Seasons after Fall - Level 4+
Jalopy - Level 4+
Super Mega Baseball: Extra Innings - Level 4+
Jet Racing Extreme - Level 4+
SAMOLIOTIK - Level 4+
Loot Hero DX - Level 4+
Tap Heroes - Level 4+
No Turning Back: The Pixel Art Action-Adventure Roguelike - Level 4+
Lead and Gold - Gangs of the Wild West - Level 4+
Gunspell: Steam Edition - Level 4+
Thanks to insideone for these!
Scrollonoid - Level 3+ | insideone
HEXOPODS - Level 3+ | insideone
Dead Dust - Level 3+ | insideone
Purgatory II - Level 3+ | insideone
Lantern of Worlds - Level 3+ | insideone
Super Blasting Boy - Level 3+ | insideone
Thanks to Kyrrelin for this one!
Punch Club
Thanks to Vee79 for this one!
Galactic Fighters - Level 1+
Thanks to Zorskan for these!
Rise & Shine
Pinstripe
Thanks for all of the support!
LET'S KEEP THE AWARENESS ALIVE!! THAT'S WHAT THIS IS ALL ABOUT! PLEASE COME BACK TO BUMP HERE AND THERE
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