Giveaway with a few life on ;)

Thanks for your link (I forgot wikipedia lool )
And the 4th my be with U too ;)

Je n'en avais jamais entendu parler avant non plus ;) (ouf parler français ça fait du bien :p )
Merci de ton soutien ;)
Pour le moment pas de traitement, juste du bricolage journalier ;)

For the moment, no cure, and analgesics doesn't works a lot.... so I learn to live with pain and do with it ;)
And yes painfull... like someone stabs me with knife...
It's genetic so waiting for a genetic modification...
Thanks for your time ;)

No therapy, taking analgesics but without relief... (I used morphinics... and less pain but still there ^^' and I trieds at least 21 analgesics before )

It's painfull, it's a life in pain with some relief that I used to play games ;)

Thanks for your support ;)

At first look, contorsionism is a great condition, but no finally no ;)
And if doctors know Ehlers Danlos, nobody would tell me that hypermobility is a gift, a gift that make me cry some day...

But some days are cool like this one ;) less pain and more games (or I can do the cleaning... hum difficult choice ;) )

Don't be sorry ;) we all have our problems ;) and learn to live with it is the best way to deal with them ;)

Thanks dor your support ;)

virtual hug, yes why not ;)
I stay strong and I try to keep cool ;)

Thanks for your support ;)

I'm hoping too ;) and for the others disease than stay invisible also...

Thanks for your support ;)

I had this too, ophtalmic version ^^'
the world is suddenly brillant ;)
As for me pepper mint in stick on the side of the head (temples? ) is a relief ^^'

Stay strong too ;)

And thanks for your support ;)

Thanks for your support ;)

Thanks for your support !

Every single word on it help a lot trust me, talking is the best way to raise doctors who can find something helpfull ;)

Thanks to you ;)
have a nice life too ;)

Thanks a lot for your words ;) I'm very touched (and tears are going to appears if I don't take care... )
So feel positive and have a lot of humour and "auto derision" helps a lot ;)
Doing what you can do, day by day, never give up and I think it's a good way of life ;)

I don't have problems to talk about my condition, if only it can helps others ;)

In fact I always have symptoms, since I'm a child, so far I go, I always be clumsy and play with hypermobility for fun and make others laught...
I'm in pain since ever, but before I tought others too and that is normal to wake up and feel like if a car hits you...
Now I now it's abnormal to feel like that...
My kneecap scrap and blocked in a wrong position (the two ) and I get an operation to replace one in right angle, but operation failed so didn't do the second ;)
It's a wrist who "jumped" all time (open a door, turn a key, eat, write ... ) that make me feel something is wrong... (and radiologists talks about type 3 at this time but no search afterthat )
Then I have bad months (6 or 7 ) : can't walk without reasons, painfull in legs, back, shoulder...
But the diagnosis was final when my shoulder decide to turn into tendinitis and spontaneous subluxations (when I bring a sweater... hem ) push my doctor to explore more and others symptoms fits and find a "logic" answer... (like asthenia, proprioceptive disorders, Digestive manifestations and so more... )

Yes far as I remember I always "have something wrong", and a study of this and my family have made the diagnosis...
So diagnosis at 35 years old, begin to search whats wrong with me at 15...

(and I can't remember how many times I heard "It's in your head " ^^' )

Finding the specialist isn't easy no matter wich country you came from, it's not easy to find someone who said "I know what you got : this is a few solutions to help you "

So many symptoms, taken appart are just "normal", but if you have all of them... ;)

Feel free to add me on steam if you want to talk more about it ;)

And thanks you for your support !!

Yes always enjoy what you have and no what you can't have ;)

Each day is a new day and someday are better than others , a bad day doesn't mean tomorrow is bad too ;)

Thanks for your support ;)

Merci beaucoup, le jeu s'y prêtait bien en plus alors j'ai pensé que c'était une bonne occasion ;)

Thanks for your support !! the game I found is so relevant that I think this is an opportunity to help knowing EDS !!

Thanks for your support ;)

Best to you too ;)

There's no worse disease, it's how you can go through live that make it worse ;)

Don't give up ;) hope you get better too ;)

Thanks for your support ;)

Also, I got a whole bunch of other shit that followed Ehlers Danlos (osgood schlatter disease and curvature of the spine, and eventually arthritis and probably a bit of other things) and from what I have learned so far, people don't understand it. I have double joints, so that and curvature of the spine leave me to be a 13 year old boy who has to go to the chiropractor already. Whenever I put something out of place, people don't understand, and tell me to stop bitching. They just don't understand yet that it leaves you very susceptible to joint related problems, making you less likely to want to do whatever crazy shit they are doing. (one good example is parkour) Never the less, it has received very minimal public coverage, and probably needs to be more well known.

Sorry can't edit the votes ^^'

Thanks for your support !!

I'm sure a cure will be find someday ;) for future generations maybe, but we need to talk about it today for tomorrow ;)

stay strong too ;)

Exactly !! could'nt say it better !!

Thanks for your support ;)

Thanks ;)

Merci beaucoup ;)
Pas vraiment du courage, mais quand tu as pas trop le choix, tu fais avec :p

Hi Orono !

I'm smiling at my computer ;) You make my day happy ;)

Thanks a lot for your help !!

Virtual hug too ;)