My youngest was diagnosed with PDD, he's being reevaluated now that he's older for aspergers, they also believe he has ODD, and the neurologist we recently saw for him implied that he thinks I should be tested as well, because Im antisocial due to social anxiety and dont sleep.
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The degree of ASD on SteamGifts is probably directly correlative to their Contributor Level.
Really though I'm not one for labels. I don't think we should group together a people with broad spectrum of symptoms with no clinical scientific method of diagnosis. In my opinion until there's a blood test or something solid in terms of testing for it anyone with developmental disabilities, whether at a young age or through adulthood, is purely that. The only upside I've seen from the autism labeling of anyone is the ability to access generalized treatment through headstart/pre-preschool programs and such.
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Didn't they map the human genome like 15 years ago? Why the hell can't they fix errors in DNA yet like in the scifi movies?
Poor eyesight, unibrows, gynecomastia in men, children born with fucked up shit like 3 arms, allergies.. being allergic to fucking peanuts or GLUTEN?? WTF is a gluten.
I feel like this should be real simple shit after 15 years, but I guess we need those medical research studies on whether or not the g-spot exists or why men over 65 have difficulty getting hard with their 65+ spouses.
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It's actually called gluten intolerance, not allergy (although you can be allergic to some proteins). :P And gluten is a protein. If you're referring to celiac disease, it's an autoimmune disorder. Sadly, you can't go around, changing DNAs like that. They are doing a lot of studies, but some diseases and especially the autoimmune disorders, are too difficult to be fixed. The g-spot researches are probably made by asking questionnaires to groups of common people or scientists. Fixing DNAs isn't that simple to be solved with questionnaires. xD Most studies take a lot of years to complete. Scientists have managed to alter the DNA of many animals and plants, but not always with pleasant results. Humans are much more complex than that. And they can't make tests on humans, right? ;P
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This kind of thinking is what helps put stigma on things like this..
Nothing. People don't care. People treat others well only when there is something to be gained.<
Sounds like you have resentment or some conspiracy that nothing is ever done for just to help someone else that everyone is in it for themselves.
While i guess you partly right as everything we do is based on something being gained it is how it's being gained that matters.
You steal something ,you breath air,you say i love you
They all are done to gain something....
You steal something,only you benefit so a personal gain
You breath air,only you benefit so a personal gain
You say i love you,but it not just a personal gain as it benefits both parties.
A Personal gain is just that when only the person doing it benefits from the act or deed.In the case of the OP they are trying to raise awareness autism while also suffering from it themselves.
That is not a person gain as they are helping others.
In the end everything we do is for something,but not everything we do is just about personal gain,as that involves only things that benefit you.I do not see how the OP trying to get word out and raise awareness for what they suffer from as a gain for only them as they are at the same time helping others.As the more awareness they get the more help the organization will get and more help with people they share the same issue as they do will get.
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Still not true..
Say you are driving around and there is an accident the car flips over,so you stop to help,the car catches fire but you still try help the person.
What does this person gain from risking there life or injury to save another person as to me if death is an out come i do not see that as a gain or injury for that matter,when they could just of kept on driving.How about going to war and being injured what person gain do they get from that?
You just want to label it as one size fits all and it just not the case.Not everyone has a reason for everything they do nor do they gain from it in any way.
As if the person dies trying to help the other person what did they gain?Death well i guess sign me up so i can benefit from death or injury as it sure something i need to gain.
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TLDR....This is a long post but the OP asked me to share a bit about the subject and i have this is bit of my opinion and a bit about me but also my brother.
I think as a society we seem hell bent on giving everything a label that is just a bit different from the average joe.Then when they do it a stigma attached to it as even if your a minor case of it,you some how become the worse case of it.
Example..
Sex Offender,yes it was meant for good,but now society has treated anyone on that list as a rapist or molester.
A simple mistake could land you on that list,one as simple as getting drunk and pissing outside some random person sees your junk and takes it as you flashing people.Do i think it deserves a punishment sure,do i think they need to be on a sex offender list no,but they can end up on it.
I am just trying to say everything that gets a label it seems most of the time whenever someone mentions they are part of it people always assume the worse.Like i have a brother who is borderline of being fully autistic he can still function for the most part as a normal person but he does have his moments after all he is no smarter then your average 13 year old despite being 30 some.So yeah he still thinks farts are funny and awesome and he does other things most would not his age.Yet when i am out with him the looks people sometimes still give him for his behavior and for being who he is.You mention what he has and they say oh wow i am sorry and so on,like he is some how to stupid to function or something.
We all struggle with something and we all excel in something,while my brothers mind may work different and he has trouble remembering things when he is talking,he far makes up for it with a photographic memory.He will remember the strangest things from 10 years ago but he is no rain man i think imo he still lacks some things to fully use that part of his memory but he does a lot better visual then trying to tell him something.
I also have what i guess they would called AADD.Though i never use that term since i can function just fine despite having it,i also have memories issues linked to that so i have been told.I have trouble recalling things tend to stay in short term memory and get left behind for long term.Then again it not enough where i forget car keys and what not,but i do struggle with like puzzles and stuff anything that involves a lot quick short term memory recalls i am not so good at.
Hence why i suck at puzzle GA's as i struggled with reading and remembering everything i read.I do a lot better visual and that makes sense why as my brain is using that to try make up for the other.So usually if you show me how to do it i am good.
Anyhow as i said we all have things we struggle at and we all have things we are good and to put label on such things at times i think it is a bit silly.Not everyone that has some memory issues needs a label or to be prodded I think they only need that if it is effecting everyday life for someone so they can find out what may be going on to get you back on track to live a normal life.
In the end to the OP good luck with your life and getting out awareness and glad you using this as a way to help it and not using it for other reasons like why you struggle with life and so on good luck on your journey.
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Thank you! My philosophy is: "It gets better." You just have to stay in there and keep fighting.
I agree that society tries to force a label on everything. It ranges from being "gay, lesbian, straight, etc." to "this is mine, this is yours." The way my cousin explained it to me is if you take labels away, then you'll get more out of life.
By declaring something is yours, you take away the ability to share it in your own mind. The way I look at it is something you paid for, in full or in majority, is technically your own to use as you want. But if you can use it for whatever you want, why not just share it?
I'm guilty of falling into relying on labels like this. I have "my computer." When my brother asks to use it (which is rather infrequent nowadays), I often say no because it's "my computer." Lots of people, including myself, describe people based on appearance, which if your description includes color, it can be deemed "racist." The term "racist" is a label as much as "black" or "Mexican" is.
And yes, the connotation of such labels matters. Hence why many autistic people are supposedly mentally slow or otherwise because of the definition of the label.
From what I've seen, however, lots of autistic students are less emotionally mature than their age suggests. Chronologically, I am 21. My family members have told me I have the mental capacity and mindset of a 25 year old. Emotionally, however, I'm still 16 or 17. I have a friend whom I went to high school with who has autism and he acts quite similarly to someone around the age of 15 or 16. It shouldn't be held against them, however, because many people with autism are more intelligent than they otherwise suggest.
The way you put it here is good, though. If I'm understanding correctly, you're saying here that we should dispose of labels and recognize a person's strengths and weaknesses. In the end, we are all the same species, despite our quirks.
If the way I wrote this doesn't really make any sense, I just got back from taking an essay exam. Kind of roasted my brain. lol
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I think we need labels as it helps get the proper help to those who need it but i also think it is not one size fits all and not everything needs a label i think it only needs one if it really is an issue and effects the person ability to function as a normal person.
Like not eating the way they should,or they spend all there time cleaning because they have a type of OCD.Or there job is suffering and so on because of what they are suffering with.But if say someone just likes everything clean and have it place but they still live a normal life why give them a label of OCD.
Like just because someone has a little trouble concentrating does not mean all of sudden they are full blowing AADD or ADD or they need meds or anything as long as it not effecting normal life i think they should not be labeled.
In fact i bet if the average person was tested they would fall under some sort of disorder or disease to an a extent if we label anyone with have a minor issue with one.
Example,when i play Fallout 4 i have to have things line up just so and have everything look a certain way when i am building and i will spend hours on it,does that mean i am OCD well i guess to an extent but this only happens when i play games but in my real life things are a bit more chaos lol.
Also when i have money i have to have the cash in order from highest to lowest and i have to have all the bills facing the same way.
Do these two quirks mean i am OCD?I would think not enough to warrant a label but i guess in a way i am just a tiny bit of OCD.Though none of these effect me living my life everyday,i still function just fine.
And yes i use to be one myself that thought one size fits all and that if you had ADD or AADD then everyone who had it had crazy issues and had a hard time with life but it just not the case plenty of people have it and live a normal life because different people have different levels of it and there for different ways it effects them.
My brother if you do things he likes and keep him busy with things that engage him for the most part you would not know he was different other then he still would have bouts of acting like a 12 year old.Though for the most part it is when he gets bored that he gets really to be a hand full at times.
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We all have tendencies of something. I have OCD tendencies but I've never been diagnosed with OCD. Someone may have tendencies of an anxiety disorder but that doesn't necessarily mean they're chronically anxious. Not all criminals have Oppositional Defiance Disorder (ODD) because they're in jail. They may have done bad things through manipulation, but that doesn't mean they all have it.
Plus we've all had that game we played for twelve hours out of the day. When I was young, it was Pokemon. In my teenage years it was Runescape. And while I don't (and can't) play it for a super long time, I find myself playing a little bit more Binding of Isaac: Afterbirth every day.
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I have ASD too, am unemployed at the moment and not sure if I ever go back to working again, but that has other reasons besides autism. For me real life social interaction can be very scary unless the conversation is well defined. Talking and interacting online is SO much easier for me :)
Although I live in my 'safe cocoon' lately I'm getting more and more fed up with that and trying to break out with reasonable success but still got a loooong way to go.
One of my biggest problems is it is not very visible. When you are missing an arm or a leg it is clear for people to see what is wrong. but if your problem is so to speak 'between your ears' people are often a lot less accepting and think you should just 'get over it'
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You can find work you just have to find something that fits you.Lots of people have that and still function fine,i think to many let it control them in the wrong way and just use it as a crutch as to why there life is the way it is.
You have to take steps to improve your social interaction with others,sitting around and saying it is a problem is not going to fix it,your either going to part of the problem or part of the solution you have to decide.It will not be easy,so yeah the easy thing would be to use ASD as a crutch people dot it your not the only one or will you be the last.
Do not let ASD define who you are,let yourself define who you are.Live for your life do not let this live it for you.
Your social skills need work and you can work on them you have to seek out help for that,sitting around just saying i lack social skills is not going to solve anything.I shall have no pity on the person who is not willing to help themselves.If you refuse to help yourself why should others sympathize with you.
My brother is borderline autistic yet he still acknowledges he needs to work on talking to people and getting better at calling people on his own and he is working on it and making great progress.We push it because he needs these skills to function so when dad who he is living with passes away he will be better prepared to take care of himself.
Anyhow to live in the shadows because you suffer from something is not living...
This is one my favorite quotes..
You either get busy living,or you get busy dying.
It is time to come out of that cocoon and become that butterfly and start a new life.I would much rather enjoy 30 years of life,then live 70 years suffering in the shadows that is not way to live.
A life is not wasted as long as you lived it to the fullest no matter how long or short it is,but life is a waste if you spend the whole time hiding in fear of it.
I wish you the best in your journey and i do hope things go well for you
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That's an awful lot of slogans. Repeating these at people who face obstacles they can't see a way around can reinforce the notion that people can't really understand their situation (outside of pre-baked nuggets of ill-fitting 'wisdom', y'know?).
(Forward apologies if this sounds like I'm being really accusing towards you, this is actually a criticism of the over-arching approach that plenty of people use, not just you! It's obvious you mean well.)
"Using it as a crutch" implies that retracting from functional adult life is somehow the easy way out. It's more that every option they can see (at the moment) seems to be a dead end, or too high of a risk. When you are 'stuck', everything can become a matter of budgeting your energy. If you pursue too many leads that fail, you feel burned out and you give up trying for a while. If you try to move too far outside of your comfort zone and something 'bad' happens, your negative preconceptions are reinforced and can make your issues worse for a time.
Rather than apply more pressure on them, I feel it is better to offer a reminder not to give up hope. Even if they feel genuinely trapped, they should always passively keep their eyes open for any potential avenues they haven't explored. Even if they say "I don't feel up to it right now" a hundred times before they say "Okay, I'll try it" just once, it means nothing unless they can spot the best way forwards. A common problem is that when a 'stuck' person gets the energy and inspiration to try improve their lot in life, they push too hard and burn out really quick.
Trying to force yourself to make positive change when you're in such a life-situation is kinda like pulling your feet free of deep mud. Anybody walking on normal grass only has to make a minimal effort to walk, but someone stuck in mud has to apply a LOT of effort just to start moving. When they eventually do start moving, they tend to sort of launch forwards far too fast, if that makes sense. Now imagine if you applied this to the process of climbing a ladder. "Normal" progress requires you to take a number of steps in order, the lowest step first, then the next highest, then the next, then the next, until eventually you are at the top, and you achieve your goal. However someone who requires great energy, bravery or inspiration to even start climbing the ladder? They're likely to try skipping steps. They want to make progress as fast as possible while they have the nerve, because they don't want to let themselves quit. So they try to climb the ladder by jumping up three steps at a time. Naturally, this nearly always means they fall off, and then feel bad about it as if they failed, and go back into a state of disillusionment.
That's why hearing things like "you either get busy living, or you get busy dying" don't really help, and can actually apply even more pressure on top of their situation, y'know? Sometimes even the best-meaning advice can actually be a bad idea. Kinda like pushing a square block through a circular hole, more pushing isn't always the solution... instead, it should be a re-examination of the coping strategies (finding a different hole).
It all depends on how 'stuck' the individual is, and how much support they have.
The trick is usually in identifying the smallest steps and forcing yourself to ONLY take those, and if you ever 'fall off' or fail, learn not to blame yourself so much. Sadly, when the goal is "Get a job", people forget that actually having the job is the end goal, not the only step. For me, it took me a good 2 years of smaller steps before I was able to hold down a job, and even then figuring out how to progress was a major struggle (and quite unpleasant at times).
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This is the reason why you're on my whitelist :3
also bump
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No, you got whitelisted for your walls of text on humane topics ^_^
and because I agree with them and I enjoy reading them
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I think you either read into some of things i said a bit to much or just took it the wrong way.
Sometimes people just need to hear the truth and not have everyone sugar coat things just to not to step on feelings.
When someone is saying they may never work again because they suffer from such and such imo is using a crutch and this is from my own personal dealings.With myself and having a brother who is borderline autistic and yet was and is able to find work.
If they would have said,i have trouble with some jobs but i know i can find a job that fits me then i would say that is obvious,I have a lot issues myself where i am not able to hold a full time job but i still find work and things to do,this is from a physical issue.
I suffer from Ankylosing Spondylitis,and i do not let it define my life i deal with it and find ways to do so and i find thing i can do I will just never be able to ever due full time work again.Though if it gets worse well i will deal with that when it comes.
In the end life is what you make it,so if you see your life is dull or boring or whatever it is going to be.If you see life as wonderful and a blessing and your glad to be a live.you will enjoy life.
Living is not about what is in your way,life is about where you are going.It is the journey and how you get there,you can either chose to be stuck in a rut or find a way out of it and keeping on the journey until you reach the end.
In the end they read it and it seemed to help,i am blunt that is who i am i do not want people to be nice to be for the sake of being nice,That is how i like it and that how i say things.Yes sometimes when i say something ti can seem harsh and sometimes i am sure it is,but it is the truth on how i feel and that is one thing you will get is my honest opinion.Not some watered down version so i do not offend someone.
I was never directly mean to the person,never called them names or any of the such thing.Time this world stop being so easily offended by advice and criticism and maybe being offended over stupid things like oh wow i think they might just called me lazy i must now go run and hide in shame.
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Ah, but that's the trouble, y'see. Pre-cooked lines like "You either get busy living or get busy dying" are VERY easy to take the wrong way, when said to someone who is struggling to become 'unstuck' in life. It may not be intentional, but it applies extra pressure on top of what they already have. It effectively says "If you don't overcome this crippling issue you have, you're wasting your life". Haste is not always the best course of action, and when dealing in other people's life-issues it always pays to consider context very carefully.
This isn't about sugarcoating things, not everything can be solved by pushing someone harder. If someone is stuck, it doesn't necessarily mean they're not trying hard enough. Not every emotional or mental issue boils down to a matter of trying to mash willpower against the issue. "Get busy living or get busy dying" is a pressure approach that demands iron-clad willpower 24/7 vs emotional / mental issues. This isn't a case of 'not sugarcoating it'. It's a case of giving ill-suited advice that further eats at a person's belief of being able to 'get better' if they are human enough to not win the 24/7 battle of wills. One of the MAJOR problems is that people often resort to using this pressure approach on themselves even without prompting from others, and is often at the core of why they feel they can never overcome their issues, because they 'tried really hard but it didnt work' or 'I just can't endure it'.
If the metaphor of the staircase / ladder didn't resonate with you, let me try this in another manner : Fitness.
Pushing yourself too hard when it comes to physical fitness, especially when you're unfit and have bad physical conditioning causes you to burn out and feel that the whole effort is pointless. Pushing yourself too hard when it comes to weight loss makes you cut out all the food you enjoy and feel hungry 24/7, making your will to continue virtually zero (and eventually feeling that weight loss is impossible when you eventually give up). Progress requires a balance of effort AND reinforcement. The pressure approach only suggests sheer effort and tolerance of pain, which is doomed to failure unless the individual has VERY strong willpower and self-assurance. A good approach to fitness is to match the intensity of your exercise to the level of your physical conditioning, and a good approach to weight-loss is to make small but permanent positive dietary changes that you barely notice (or even enjoy). The pressure route demands a human being have iron-clad willpower 24/7, every day of the ordeal. The constructive route only asks you take steps that are within a maintainable difficulty appropriate to your level of progress.
Just because a person says "I don't believe I can do this" doesn't equate to "I'm not trying or looking for a way I can make it work".
This is particularly true in the case of people who have lost hope, or have tested their willpower repeatedly and failed due to having tried the pressure route. Hell even if they say "I will never be able to do this, I'm pathetic, I give up", that is often an extension of the pressure route, trying to essentially beat themselves back into fighting shape. Only over time, it has an opposite effect. They're often looking for an excuse or some glimmer of a viable action plan, but conserving their energy until they see it. Had they not tried the pressure route in the first place, they might not see so many things as so insurmountably difficult that they shouldn't attempt them again.
#######
"I suffer from Ankylosing Spondylitis,and i do not let it define my life i deal with it and find ways to do so and i find thing i can do I will just never be able to ever due full time work again.Though if it gets worse well i will deal with that when it comes."
Everyone's path is their own. I have Generalised Anxiety Disorder and a whole bunch of fucked up neurosis leftovers from a depression I survived with a virtually non-existent support network. Yet I would never dare to insinuate that anybody faring worse than I did is doing something wrong, or isn't trying hard enough, or has the wrong attitude, or just needs to effectively 'man up'. For one, each ordeal is unique to the individual, and secondly, we are all at different points along our path to recovery. What works for someone in a 'functional' phase of their problem may be utterly incompatible with someone in a 'struggling' phase.
"You can choose to be stuck in a rut"
"In the end life is what you make it"
Again, this advice will be heard very differently depending on who it is offered to.
It can very easily be read as "Whatever happens to you, you did it to yourself"
Remember we're not talking about a physical injury here. Tact (and CONTEXT) is key.
For example, if someone lives by the belief that they would rather die young if it means they can live in excess (drinking heavily, pushing their sugar allowance as a diabetic, etc), you should seriously think twice about trying to comfort a grieving family at the funeral by saying "Well, they went out the way he wanted to!". When it comes to emotional coping, you can no more 'choose' or 'decide' your way out any more than you can magically alter your opinion, sexuality or emotional state with a flick of a switch. Yes, if you're mindful then you can definitely channel and direct your state and opinion, but you cannot outright convert it. Simple test : Can you right now at this very second 'choose' to feel abject existential horror? How about genuinely finding a different sex attractive? What about your political opinion, can you genuinely reverse that at this very second? No? Because this is pretty much what you're implying someone with an emotional issue does. "Just change it" is a cop-out. As underlined before, there are steps. Accidentally applying pressure for not fast-forwarding the process when they may not even know what those steps are? That rarely helps.
As for them reading it and it seeming to help? Dude. I'm preeeeetty sure that was sarcasm. Read it again :
"Thank you for telling me I should come out of my cocoon though, I would have never thought of that myself"
"Time this world stop being so easily offended by advice and criticism"
This is always Interesting to hear... given all I offered you was constructive criticism~
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Autism is only part of the reason I have trouble finding work. If that was my only problem I'm sure I could have over come it. Thank you for telling me I should come out of my cocoon though, I would have never thought of that myself
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Well glad i could help as that what i was trying to do so i am glad it came off as that.
Life is never easy,never will be but i always always try tell myself it could be worse as there is always someone that has it worse then you.
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I've read a lot of these replies and I find the common piece of advice they are offering you is you need to have confidence in yourself. You cannot rely on using autism as an excuse. A lot of people in my high school used their disabilities/challenges as an excuse for not trying their best, saying things such as "I can't help it." One of these people was my ex who I dated for over two years. It infuriates me when I see someone who isn't willing to try hard because they have a "disability," but I also feel helpless because I can't control their thoughts or dictate their actions, no matter what I say.
But back to confidence. Recognize your strengths first. Then recognize your weaknesses and strengthen them. One of mine is I tend to rely on a strict routine, in which I do one thing, then another, then another, in that order. I've got a chart where I've listed what assignment I'm going to do on a specific day. But because I have this routine, I get really moody and can't cope very well with sudden change. So what I started doing was to try and think in the moment. Rather than say, "do I have time for this on my schedule?," I've said, "should I do it now? Yes or no?" I've been able to open up my mind quite a bit this way. A month ago, I went and met up with some friends for a sort of stress relief. One asked me if I wanted to help star in his video, which was his assignment for a History class. Now, I am really self-conscious on camera and almost always refuse to see myself in delayed footage. But this time, I decided to do it just for the hell of it. And I actually ended up having a lot of fun!
Regarding work, though, the people that support you now are not always going to be around. Sooner or later, you will have to find a source of income to support yourself. When you have a fear of failure like I did, it's really difficult to expose yourself to ten different businesses in a day, and then find out you didn't get any of those jobs. But you have to keep going! Eventually you break through and you find work. And when you do, you realize "I can do it." And then you keep telling yourself that and you find you can do other things.
I've also learned the hard way that the "safe cocoon" I lived in is not impenetrable. Life will find a way to force you out of your comfort zone, and this is okay. If you make a mistake, so what? As long as you learn from it, you've succeeded. If I remember correctly, Abraham Lincoln, 16th president of the United States, went through several jobs in his youth without much success. One of these saw him as the slowest postmaster in the state of Illinois. But he kept going and eventually made an incredible mark in history with the Emancipation Proclamation, which ended slavery in the US.
So trust me, you can do whatever you put your mind to. You just have to put your mind to it. I wish you the best of luck, mate.
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I found this read a little more synthesized about the signs of detecting autism:
http://www.helpguide.org/articles/autism/autism-symptoms-and-early-signs.htm
I've personally never met a person with this condition, but my knowledge is that they are people who have a harder time to communicate with other people and kind of perceive the world in their own and unique way, but until now I wasn't aware that some people with autism didn't have socialization issues, my definition was too generalist I suppose.
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Depression is not caused by Aspergers, but people with Aspergers have a higher than normal rate for depression and anxiety. It's tough sometimes. But it will get better as long as you keep going.
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No, the fact that I have a 4.0 GPA, been on my college's Dean's List three times, have a family and friend network willing to support me, and enjoy life are my biggest achievements.
Please tell me. What are yours?
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I've been diagnosed in the spectrum. But only a few years ago while going through a depression. After that I learned who I am. I know when to say no, when i'm near my limits. I'm much more happier now.
A year ago I learned from my grandmother that my grandfather was diagnosed asperger. So it's probably family-related.
Would it have been different when i've been diagnosed as a child. Yes i think so. I would have been more challenged in my education. And also understand why I wanted to be by myself so often and lot of other things. Ah well, can't change the past. And why would I want that so bad. I might not have met my wife. Who helps me alot.
But other people only hear of extreme cases, and therefore if you tell them, they don't believe you, because it isn't that visible. And you need to explain. And then they understand.
and using the words disability or challenges is just a way to put you in boxes. Everyone is limited by something. If i would get a child, and it would have autism. I will not use these words, because they limit you. I would tell them how they can enjoy live the best. Just as I have learned some years ago.
And society can improve by not saying we are disabled. We are different then some people are used to. But find the place where we function the best, and you can be astounded what will happen. Some of our scientist/doctors etc have/had autism. And they contributed a lot to this society. Some say even Einstein had autism, but ofcourse this can't be proved when somebody is already dead.
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I'm glad there's still a few people out there who have a good heart and choose to look out for their loved ones. And yes, I agree that more understanding of autistic people is what is needed.
Plus to me, my best way to live life is to embrace who I am, whether I describe myself as having challenges or not. When I'm treated as an adult rather than a child, I feel at ease with the person I am talking with. Those who choose to not accept me for who I am are thrown out of my life for good.
To the contrarians who believe people with autism do nothing worthwhile, let's direct their attention to famous people who have autism and became successful.
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Yes. But sometimes you have to give people some time to understand you.
At my former company, I used a pamflet/form with all kinds of characteristics that a person with autism can have. But not necessary have.
And I asked my Department head to check what he thought was part of me and my autism. And I did the same, and we compared afterwards.. But I was surprised that, with a few exceptions, he checked the same things as i did.
We discussed what these characteristics did to me. And what costs me energy and give me energy. And although they could be negative on the workfloor, it wasn't meant negative, but was just a part of who I am..
f.e. That I use my headphones to concentrate better, because I wouldn't be distracted by sounds and all the other things that get to me. And not that I didn't want to talk to collegues etc.
And many more things. So he slowly understood me, what and why I did work like that. How he could get the best out of me. But that meant his way of leading people didn't always work the same for me as it did for other collegues.
It can take some time, and i had some help in talking to the head of department. But sometimes you have to take initiative, even when it's against your nature to take initiative.
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Here is an interesting article on a link / similarities between Autism and Prodigies: the prodigy's brother
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I may or may not have Asperger's Disorder myself. My friend has Autism, and my roommate probably does as well. Thing is, we're all women, and based on that and my hard-trained ability to detect annoyance [if no other emotion] I was told I don't have it the only time I was tested. Mind you this was years after the initial diagnosis, after I had been working hard at being sociable and understanding of others. My roommate was [I'm almost 100% sure] misdiagnosed as having depression and OCD, as well as ADHD. Also, the person diagnosing her was super rude, and implied she wanted to have the disorder for some reason. I assume he figured she wanted disability or something.
College, as late as it is. I have severe depression too, so for a long time I wasn't able to figure out if I even wanted to do anything, much less if I was capable of it. Right now I'm working towards one of two things- a Psych degree or a Japanese degree [for translation purposes].
I think the choice in vocabulary is less important than the feeling and behavior behind it. Disability and Challenge mean the same thing if the behavior behind it is the same; even then, to treat a 'disability' like something capable of being worked past, or improved upon, is the same connotation as 'challenge', isn't it? And oftentimes people will refuse to use 'disability' but still treat it as a hard limitation, even judging the person in question based on their perceptions of what it should and shouldn't mean. Oh, but you can't say 'disability', because that makes them sound less than, right? People are paradoxical.
That all Pervasive Childhood Developmental Disorders [including ASDs] are Down's Syndrome. The extent to which this pisses me off is enormous. People are deathly afraid of having an autistic child without ever even realizing what that would mean, or that it's a spectrum of disorders. I'm a reasonably well-spoken, slightly awkward individual with a small group of friends who has learned to work with her disability to a certain extent. My room is a thoroughfare to the kitchen and backyard, with the living room on the opposite end, and an entrance to the house on a third wall. To avoid overstimulation I generally just stay in there, with the knowledge that someone will eventually come in and give me the social contact I need for the day anyway.
Invisible Disabilities are incredibly damaging to social situations, especially when growing up, and they still are. I have difficulty not being a know-it-all about certain subjects, and I don't have any idea what to say when talking to new people. When I speak to people I know, I will occasionally say something stupid or accidentally insulting, and sometimes catch it just in time to make it sound lighthearted, but have tried hard enough for long enough to be able to usually recognize when I say something like that even when I don't catch it. It's always a struggle though.
I dunno. I think that one of my obsessions [rabbits] is actually pretty accurate of, not Autistic people exactly, but introverts. They are social animals at heart, but are strange for housepets. If they want attention, they will come to you and let you know. If they don't, they will go away. They like being by themselves, but also appreciate pets; the thing is, they are only willing to be loved on their terms. In the meantime, leave them alone. They will let you know if they want you to include him.
That being said, I guess I understand that nebulous things like mental difficulties are nigh-impossible to explain properly, so I'm a bit stumped.
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I was actually diagnosed with Asperger's syndrome last year (although I'm not sure if I have Asperger's or High functioning Autism). I always had a passing suspicion, but never really looked into it (the Asperger's/ Autism itself was a roadblock towards that).
It was a huge relief to finally have an explanation for things I've dealt with my whole life. It hasn't made too much difference yet, but I've started to find resources and other things to help me.
Also, people around me have started to be a lot more understanding and stop thinking I'm being weird or lazy, which is nice. I'm highly intelligent and it's very hard to tell that I am autistic on the surface.
I definitely have intense interests (linguistics, for example). It's both a blessing and a curse. I have been able to become fluent in reading/writing/speaking Mandarin Chinese, and I've studied Greek, Hebrew and Japanese (learned katakana and hiragana in one class period while everyone else took a week or so). I was even in some Masters/PhD linguistics classes alongside the Japanese and Korean professors when I was an undergraduate (it was interesting being a classmate with my Japanese professor :) )
But on the other hand, it's hard to focus on anything that I'm not at least somewhat interested in. This has made it very hard to find work over the years. When I actually try a job, I find myself (sometimes literally) falling asleep in the middle of work and most jobs just lasted a few months. Also I need to have a sense of purpose, and retail and such seems so empty.
I don't have social problems per say. I'm very friendly and enjoy being around people, but I do have trouble with social cues sometimes. I sometimes get a bit loud when I talk, and I don't always notice when I've said or done something awkward. My biggest problem socializing is not being able to fit in. I don't have many similar interests as most people, and since I don't always work and don't drive currently (I have a license), I don't have a lot of common ground.
I have sensory hypersensitivity, so pretty much everything can be overwhelming at times. Sounds, light, temperature, textures, etc... etc... which also hinders working and things like parties and whatnot. Winter is hell on me, and tends to undo some of the progress I make during the summer. It's not fun having to start over every summer.
Not sure if this is exactly related or not, but I have an extremely strong, photographic memory. For example, I can clearly recall things from when I was 2 years old, that my brother who was 7 at the time can't remember a bit, but my parents and other people can confirm.
As an added bonus, I've got OCD and anxiety disorder, and I've suffered from depression, although that's been better since getting my Asperger's diagnosis.
And I started having seizures last year too! \o/ Thankfully those are under control with medication, but I've never had anything similar happen before, so nobody's sure what caused them.
Sorry if I this was a bit rambling / incoherent :P, but it's late, etc...
Thanks for starting this thread, it's been interesting reading :)
Happy Easter :D
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1) I have asperger syndrome. The lightest possible form of autism. I was diagnosed as an adult. (BTW, the Asperger syndrome was found out when I was in school, and for next 10 years hardly any doctor in my country ever heard about it) I heard first suggestion that I might have autism when I was 19, but I ignored it. The second time other doctor said I act like someone with ASD I was 24, and still it took me few more years, and one more suggestion from third doctor before I decided to get tested.
The biggest challenge for me was probably overcoming the uncanny valley. When people are speaking with me they realize that something is different about me. Most of them don't even realize that, but their behaviour is changing. At school I was usually described as "moron", "idiot" and "retard" by most other students and three teachers. (one called me like that in the face inside crowded classroom, with all my classmates present in high-school) School was a nightmare, and mostly because I could not understand why all the people are acting so irrational. (If you're an aspie the entire world is one big WTF to you, after some time it is easier to accept this, but other people never stop to amaze you) I found an interesting way around this. I chose my clothes, and the rest of my appearance in the way to make sure that intuition of other people are telling them that they don't know how I will behave. It is not perfect, but the improvement is astonishing. (I usually wear bright shirt, jeans, long hair tied in a pony tail and moustache - combination which looks slightly weird, but still can be considered semi-formal. When I need to go to some formal occasion I usually chose white suit and black shirt.)
The other problem is the fact that many people are thinking that I have mental disability. So one thing. Asperger Syndrome is not a mental disability. I can understand what you are talking about, and if I ask you to repeat the question it means that I wasn't listening to you, and you don't need to speak very slowly and loudly. When I say that I don't know how to get to some place, you don't need to tell me every single turn I need to take after leaving office or home, just tell me the address, I'll use sat nav. And I know how to turn on the computer, and what does the keyboard do. Many people act like I am contagious or something. It took me many years to learn how to act like a normal person. But it is still only acting. I am pretending my entire life that I am someone else than I really am, and my acting is not perfect.
And last big thing. Other people emotions. I have a lot of problems to understand them. It takes me a while to realize that someone is irritated or sarcastic. It is not that I don't see emotions, or not feel any emotions. It just takes a while for me to understand them. And more complex and more unusual the emotional states are, the more time I need to realise what is going on with other people.
2) I'm in my early 30's. I have a job as a software developer, creating solutions for small business. I'm earning about 20-30% less than average person at this position, but I was unemployed for too long to turn it down. I'm not sure how they found out that I have ASD, but they known before my first job interview. I'm currently looking for a new job in Game development.
But it wasn't always like this. I had a lot of problems at school. The funny part is that there were four classes that no one could get even close to my level (mathematics, physics, chemistry and IT - top scores in all of them) but in the rest I usually were average with the exception of polish language (below the average all the way - and it is my first language) The first college was disaster. I dropped out after two years of pain and suffering. After that I never lasted more than 6 months in a single job, until I was hired to set-up computers, printers and some basic software for real estate evaluator. It was supposed to be a job for a day or two and ended up in six years. All because the company was run by a better kind of people.
In the meantime I tried college again. This time I finished Computer Engineering with average score of 4,92. (in Poland theoretical maximum is 5.0) I would like to get also title of Unity Certified developer, but nearest exam is over 600 km away, and I can't afford it.
3) First of all - there is no such thing as "typical autism". There are 8 or 9 most common types of autistic disorders, and more than half of people diagnosed with them does not have any disabilities of any kind. Calling us "people with disabilities" is unfair towards both us and people with real disabilities. People with Asperger Syndrome are like PC with Linux. Different than Windows, and not so common but not worse nor better than Windows or MacOS. We are just different.
It is more complicated with people who have more serious types of Autism. But I would still hesitate to call them disabled. If you tell a lie a million times it will become truth. If you tell someone that he is worthless, he will believe it. I know I did. The words can hurt. Of course saying that everything is all right won't work. But it is necessary to say it the way which will leave some space to work with. If someone will tell you that something is impossible it might be impossible. Saying that something will be challenging gives you a chance. And it makes all the difference in the world.
The problem for me was that I wasn't diagnosed at that time. It is always better to know.
4) The amount of prejudice towards autistic people is just unbelievable. And some media (like "Forrest Gump" or "Millenium") only try to extinguish fire with gasoline. Most of us are not idiots. We are not geniuses too (or savants). Some of us are idiots, and some of us are geniuses - just like normal people.
So this is short list of things I was suspected to do:
5) A lot of people with asperger syndrome was thinking about it for a long time. But how we can say what is the difference between us and other people when we were all born this way? We don't know different life, and so called "normal point of view". It is like describing how the colours look like to the blind man. The only difference is that most of the world is blind to our point of view.
But we might have found a way, we would like to make a game about autism. This way we could give other people reference point to how we see the world. But there are a lot of challenges here. For example how to show in game over-sensitivity to smells? Or how to make people see how we think?
Also we need to secure funding. And our team is too small to create this. My best estimate is that we need about 10-15 more people, about 50-100k USD for outsourcing and licenses, and we can finish this in about 12-18 months. Unless we agree on some sort of easier to make graphics style, and maybe cutting few features.
I saw one great example of game showing autism in a serious way, pointing the right strengths and weaknesses of the autistic woman. It is called "To The Moon". I recommend it to everybody who want to find out something about autistic people.
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Posted my own giveaway here! Thanks for bringing attention to this topic!
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4 I have no issue with any disabled people whatsoever (is autistic people even considered disabled?). As long as they don't endanger my physical self I'm fine interacting with them. Some people have tendency to push things though, and that's the state of society we live in. I can sympathize with their situations, but I'd rather not doing more than I've done as I have enough personal issues to deal with. At least I don't contribute more to their hardship.
Or maybe I just haven't realized I had met some autistic people?
I have special prejudices against LGBT (either autism and these are more about mental) though to the point I don't want any dealing with them in any shape or form (unless I don't realize the person is one of LGBT lol). Personal reasons. They're not physically disabled anyway.
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The media consider autistic people to be disabled and autism to be a disease. So does Autism Speaks.
Autistic people, on the other hand, do not consider themselves to be disabled, nor do many teachers.
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I'm autistic, but it's kinda hard to talk about it, since I didn't really know that untill a couple years ago because I didn't know Asperger's syndrome was a branch of autism. Also, bump.
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I'm making this topic today solely to discuss autism. Recently, I collaborated with a news organization local to my area to discuss Autism Spectrum Disorder (ASD) and how challenged college students such as myself adjust to the real world. I could certainly write a book or lengthy forum post about this subject, but I want to try to keep my part short and present my article as well as questions. Here is the article
Here is an article from the National Institute of Mental Health explaining the signs and symptoms of autism.
In other boards, I would never bring this up. I feel that the SteamGifts community is more good-natured and mature than many others out there.
My main purpose is I would like to hear of your experiences with autism, if you have had them. You can answer as many or as few questions as you want.
I would like to discuss:
I want to invite everyone into this conversation, whether or not you have autism. Feel free to keep your answers short, but try to promote serious discussion.
Lastly, I'd like to add: Happy Easter!
P.S. I've reached Level 5! I'll be coming out with something soon, I promise.
Giveaways
ambidot
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