Dercum’s disease. Neuromyelitis Optica. Landau Kleffner Syndrome. Malakoplakia. These are all rare diseases that you probably have never heard of. For me personally, I had no idea what they were until I googled “rare diseases”. Some of these have cures. Some of them do not. Even though they are rare, that does not mean that they should be put ALL the way on the back burner. How do we find out more about them? This is what NORD provides:
“Research gives hope to rare disease patients and their families. Since 1989, NORD has administered a Research Program through which we provide grants that have resulted in numerous published advances and at least two FDA-approved therapies. NORD is also working with rare disease organizations to launch disease-specific registries to support research.
NORD pioneered Patient Assistance Programs in 1987 and we are the leader in patient-focused PAPs today. NORD programs include free drug, co-pay and premium assistance, travel/lodging assistance for clinical trials, and expanded or emergency access.
NORD provides information about rare diseases, patient organizations and other resources for patients and families. We also promote awareness of rare diseases among physicians and other medical professionals.”
To find out more, head here: https://rarediseases.org/about/what-we-do/programs-services/
Note: For every 8 entries, 1 cent will be given to the Rare Disease Foundation
To enter for your chance to win Astroneer, fill out the Do-Gooders Survey here: https://www.surveymonkey.com/r/K8LNGYZ
To enter for your chance to win either Injustice: Complete or Mortal Kombat: Complete join the Do-Gooders Gaming group: http://steamcommunity.com/groups/dogoodersgaming
Giveaways here: https://www.steamgifts.com/giveaway/l320i/mortal-kombat-komplete-edition
https://www.steamgifts.com/giveaway/oOFdY/injustice-gods-among-us-ultimate-edition
Disclaimer I have no ties to any of the video game developers, publishers nor charities
For more exclusive giveaways connect with DGG here:
Twitter: https://twitter.com/DoGoodersGaming
Facebook: https://www.facebook.com/dogoodersgaming
Reddit: https://www.reddit.com/r/DoGoodersGaming/
286 Comments - Last post 10 minutes ago by hbouma
173 Comments - Last post 28 minutes ago by hbouma
642 Comments - Last post 39 minutes ago by Oppenh4imer
58 Comments - Last post 1 hour ago by RobbyRatpoison
864 Comments - Last post 1 hour ago by Ashtart
255 Comments - Last post 3 hours ago by XfinityX
30 Comments - Last post 11 hours ago by TinTG
13 Comments - Last post 1 minute ago by FullMetalZ
13 Comments - Last post 10 minutes ago by Momo1991
79 Comments - Last post 22 minutes ago by axolotlprime
6,402 Comments - Last post 38 minutes ago by Oppenh4imer
527 Comments - Last post 45 minutes ago by okamiking
8,209 Comments - Last post 53 minutes ago by ClapperMonkey
96 Comments - Last post 58 minutes ago by Vampus
THX!
Comment has been collapsed.
Thanks a lot, JunkyDGG
Comment has been collapsed.
Thank you very much, hope the Rare Disease foundation will get some useful donations thanks to you!
Comment has been collapsed.
Thanks for putting this up Junky.
Comment has been collapsed.
my honor to help
Comment has been collapsed.
Thank you :D~
Comment has been collapsed.
Thanks :)
Comment has been collapsed.
thanks
Comment has been collapsed.
Thanks, love your charity too!
Comment has been collapsed.
thx
Comment has been collapsed.
Valeu!!!!!
Comment has been collapsed.
Thank you for this, it's very much appreciated
Comment has been collapsed.
Thank you for both the giveaway and the donations.
Comment has been collapsed.
thank you !
Comment has been collapsed.
Thank for the chance ! =)
Comment has been collapsed.
Thank you :)
Comment has been collapsed.