October 1st is National Day of the People's Republic of China, which is an excellent time to make a train. But because I don't really have much more to say about National Day I figured I might as well take this opportunity to share a little cautionary tale.

But first let's get the important part out of the way, the entrance to the train is right here
Level 4+, all bundled.
I promise there are no hidden links in the text wall below, so you can safely skip it if you don't want to read it.
ENDED


I may regret posting this, but here it goes anyway.
This is the brief story of my two tumors and how I failed to care for myself.

I officially started my battle with this matter in 2013 and everything seemed to be moving smoothly for a while. I visited several doctors and had plenty of tests; everything you'd really expect while on waiting list for surgery in this sort of matter. It was early 2014 when I got the exact date for my surgery and was looking forward to it. I arrived at the hospital on time, changed into that fashionable hospital attire and even got premeds before a surgeon came to me with the information that they wouldn't be doing the surgery that day; something was wrong with the paperwork. Feeling confused I simply left the hospital and expected the matter to be solved in matter of couple weeks. It was the next week when I learned from a different doctor that it was not that simple and would take longer because I had been placed back at the end of the line – they treated the incident like I had canceled the surgery time myself.

This was where my visits to the hospital increased as you'd expect, having to hop around a lot and keep increasing the amount of bills I got from it. It was exhausting and it was confusing, but in December 2014 I learned that I should be getting an invitation to surgery again. Optimistic again, I waited. And I waited. I waited and I trusted, but finally in September 2015 I was convinced to call and ask about it; turned out due to a mistake I had been taken out of the list completely.

The same waiting continued and when I received a special letter in March 2016 I thought that was it finally. Turned out to be just another examination and that the doctor examining me then was only putting me on the waiting list after the examination. Exhausted with the way things were going, I made an appointment with a very expensive specialist, who noted that the doctor who had sent me home just couple hours before surgery had been guilty of malpractice. Figures.

During the summer I received an invitation to surgery. Of course it came during a time when almost everyone had their summer vacations, making it inconvenient to call and make sure all papers were in order. When I finally got the right person on the phone, the nurse I talked to promised to discuss it with the doctor and make sure. They were supposed to send me something to sign, so I waited. I waited a week and I waited two, still nothing. I decided to call again and the nurse claimed she hadn't had time to talk to the doctor. I requested the information where I could directly reach the doctor, but she insisted that it “wouldn't be a good idea” and again promised to talk to the doctor and then call me back when she had. I agreed to it but told her that I'd be calling again if I received no word from them during the same week; the nurse called me back 30 minutes later. Somehow she had not found the time in two weeks to talk to the doctor, but when prompted she found the time within the next 30 minutes. I received the papers, everything was in order.

1st of September I was on my way to the hospital when I got a sinking feeling. I was only a short distance away from the hospital when my phone rang, it was unlisted number but I had no time to answer it before it was disconnected. When I checked in, I got another bad feeling because the receptionist didn't ask me the usual questions and simply told me to wait until someone would come talk to me. Soon enough another nurse came to me, smiling politely as she told me that she had tried to call me and let me know that my surgeon had fallen ill, meaning my surgery would have to be postponed.

Finished with this sort of behavior from them, I told the nurse I would not be leaving before I had talked to a doctor who'd explain the situation to me and I'd want the right to record the discussion. I also mentioned a lot of other things (a lawyer and the previous sending me home incident, for example, I just went off completely) and the nurse agreed she'd let someone know these were my wishes. So I sat back down, in complete shock over what was happening again but determined to fight; 20 minutes later the nurse returned and said surgery would happen as planned. It turned out my surgeon wasn't sick, but some other doctor was and they were trying to lessen the workload by rescheduling people; basically the nurse had lied by claiming my surgeon was sick and because I wasn't a terminal case, I was instantly on their rescheduling list. After this point everything went as it should've, even though I didn't really believe it until I woke up after surgery. My journey isn't over yet but from now on I won't be as trusting.

My point here is not to attack any doctors or nurses personally as people, but to encourage people not to be as lenient as I was when it comes to their medical care. You are the one who cares about your health, not medical professionals, they are simply doing their jobs. Make the calls to ask things and make sure they won't slip you under their radar, it's in your hands to make sure you get treated like you should.

8 years ago*

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Are you going to comment something rude?

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You bet I am
Why would I do that?
I'm hungry

That was a very educational train. Thanks for the giveaways.

Regarding your story, it's infuriating that those (supposed) medical professionals treated you like that. I shudder to think how much longer they would've postponed your surgery if you didn't impose yourself. I'm curious, did this happen in a public hospital, or a private one?

8 years ago
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Public one. I looked into going to a private one but there was no way I could've been able to afford it, it would've been about seven times more expensive.

8 years ago
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Is that counting what was covered by your insurance + the extra bills you had to pay?

8 years ago
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It is, since insurance only helps out with public health care. :/

8 years ago
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That's what I meant. I'm trying to figure out what the surgery would cost in a public hospital for someone who doesn't have health care, compared to what it would cost in a private hospital. Is it still seven times more expensive? Where I'm from, costs between public and private are often comparable.

8 years ago
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thks for a train

8 years ago
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I wish that your story will finish with a happy end (I'm disabled person, so I am more than familiar with the darker side of hospital and whole health care reality).

8 years ago
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Thanks

8 years ago
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Damn Nox, It really pains me to hear/see anyone go through that and I wish you all the best with your health.Are there any grounds for a lawsuit or would that be an option for you financially in the long run?

8 years ago
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Thank you! As far as I understand, if I had taken them to court for sending me home the first time there would've been a chance to win. That of course would've still cost me a lot in lawyer fees and knowing that hospital's usually have really high end lawyers, it could've ended up my loss anyway due to some tiny, tiny technicality so I ultimately decided not to risk it as much as I would've wanted to.

8 years ago
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Wow... What a sad realization of what many are facing with medical care...

Seems like we should name it medical UN-care!

It took me many doctors for 10 months to get a diagnosis during which most doctors told me it was all in my head... One doctor denied that I was even experiencing any pain... Go figure.

8 years ago
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That's the worst then they try to tell you if you do or don't feel any pain, like they would have any way of knowing something like that. Good that you finally found a competent doctor even if it took you a long time!

8 years ago
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BuMp!

8 years ago
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That's just horrible, what you've been through. I don't know how you had the patience to go through all that (willful) incompetence and bureaucratic bullshittery, really just awful. I probably would have snapped and/or went elsewhere if I were in a similar situation. I'm glad you finally received the treatment you were due and I hope things turn for the better for you. Good luck!

I hope you get to enjoy Golden Week and thank you for the train. I entered a few wagons :)

8 years ago
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I'm glad you were finally able to get your surgery done and I hope you get well soon! Thank you for the giveaway train too! =)

8 years ago
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So sorry that you had to go through all of that :( Have you received the biopsy results yet?

8 years ago
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I thought this was a funny story about medical procedure at first.
But when it comes to your life, you have to be serious. No generous jokes for your right of receiving medical cares. It's what you told here.
Thanks and have a good life.

8 years ago
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Thank you for the train. Sorry you had to go through that.

8 years ago
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I completely agree about being an advocate of your own health. I've had quite a few bad experiences with doctors as well, a couple involving messing with my spine (with one, trainees were allowed to give me nerve blocks according to the fine print which I signed...they failed to explain that I had to ask the head doctor to do it personally) who messed up 5 times leaving me with major back pain and scar tissue buildup for years. Also had bad experience with my spinal cord stimulator implant. And before that I'd been told "it's all in your head" and then when I had symptoms you could actually see they just pawned me off on opioids, for 4 years after seeing a good 20 doctors...I ended up figuring out what I had thanks to google and only being properly diagnosed after and every doctor knew exactly what it was afterwards "ah yes, of course you have that". -.-

I have definitely learned to speak up, ask questions and trust my instinct. I've thankfully had a couple doctors who genuinely cared about me and have gone above and beyond to help, but it's the minority. It's normally "let's fit in as many people as possible, while spending as little time with each patient as possible" mentality and it's unfortunate. Thanks for the train and wishing you all the best in the future with your health. :)

8 years ago*
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That sounds terrible, I'm sorry you had to go through that. Hopefully nothing like that ever comes your way again!
Thank you. :)

8 years ago
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Joined one, thank you, hope you'll recover soon. Also wishing a good celebration.

8 years ago
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Thank you for both wishes. :)

8 years ago
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Thanks for your train and hope you're swift in recovery!
早日康復~ i guess you can understand chinese right? ;D

8 years ago
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Thanks for the train!

8 years ago
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Deleted

This comment was deleted 6 years ago.

8 years ago
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Thanks for all the good stuff!! Take care!

8 years ago
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Thank you for the ride! It was interesting to learn about this holiday.

8 years ago
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I'm sorry you had to go through all that.

Thanks for the gifts.

8 years ago
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Thanks for the amazing, long train, and also really well done plucking up the courage to post that story. Must have taken some courage. I'll definitely be thinking be thinking about it.

8 years ago
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Thanks, bump

8 years ago
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Thank you for the train, Noxco.:)

I hope you have a wonderful weekend. Take care.:)

BUMP!

8 years ago
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Closed 8 years ago by Noxco.