Dercum’s disease. Neuromyelitis Optica. Landau Kleffner Syndrome. Malakoplakia. These are all rare diseases that you probably have never heard of. For me personally, I had no idea what they were until I googled “rare diseases”. Some of these have cures. Some of them do not. Even though they are rare, that does not mean that they should be put ALL the way on the back burner. How do we find out more about them? This is what NORD provides:
“Research gives hope to rare disease patients and their families. Since 1989, NORD has administered a Research Program through which we provide grants that have resulted in numerous published advances and at least two FDA-approved therapies. NORD is also working with rare disease organizations to launch disease-specific registries to support research.
NORD pioneered Patient Assistance Programs in 1987 and we are the leader in patient-focused PAPs today. NORD programs include free drug, co-pay and premium assistance, travel/lodging assistance for clinical trials, and expanded or emergency access.
NORD provides information about rare diseases, patient organizations and other resources for patients and families. We also promote awareness of rare diseases among physicians and other medical professionals.”
To find out more, head here: https://rarediseases.org/about/what-we-do/programs-services/
Note: For every 8 entries, 1 cent will be given to the Rare Disease Foundation
To enter for your chance to win Astroneer, fill out the Do-Gooders Survey here: https://www.surveymonkey.com/r/K8LNGYZ
To enter for your chance to win either Injustice: Complete or Mortal Kombat: Complete join the Do-Gooders Gaming group: http://steamcommunity.com/groups/dogoodersgaming
Giveaways here: https://www.steamgifts.com/giveaway/l320i/mortal-kombat-komplete-edition
https://www.steamgifts.com/giveaway/oOFdY/injustice-gods-among-us-ultimate-edition
Disclaimer I have no ties to any of the video game developers, publishers nor charities
For more exclusive giveaways connect with DGG here:
Twitter: https://twitter.com/DoGoodersGaming
Facebook: https://www.facebook.com/dogoodersgaming
Reddit: https://www.reddit.com/r/DoGoodersGaming/
221 Comments - Last post 33 seconds ago by StarPONY
25 Comments - Last post 42 minutes ago by Kutar
9 Comments - Last post 56 minutes ago by CrisR82
410 Comments - Last post 58 minutes ago by AquilaSol
1,007 Comments - Last post 1 hour ago by sensualshakti
184 Comments - Last post 1 hour ago by RileyHisbert
2 Comments - Last post 3 hours ago by XfinityX
38 Comments - Last post 19 seconds ago by antidaz
3,312 Comments - Last post 15 minutes ago by pizurk
76 Comments - Last post 25 minutes ago by eguguwap
228 Comments - Last post 28 minutes ago by lycankai
16,652 Comments - Last post 31 minutes ago by MjrPITA
7,913 Comments - Last post 34 minutes ago by herbesdeprovence
503 Comments - Last post 38 minutes ago by Thexder
Hvala puno!
Comment has been collapsed.
Thank you!!! :)
Comment has been collapsed.
Thanks a lot
Comment has been collapsed.
Thank you!
Comment has been collapsed.