... I'll never give up.. but... I'm sorry. T.T ...

I've been twenty years away from all I ever knew... to return would make my dream... come true.

I am no longer going to keep this PSA going. It violates steamgifts terms which state:

"When posting links or content, that content should not force users, encourage users through reward, or primarily exist as a traffic source for users to perform an action for promotional, commercial, or monetary benefit. Such actions include but are not limited to clicking a referral link, liking a Facebook page, following a Twitter account, joining a Steam group, completing a survey, or making a donation."

Currently, everything on steamgifts, including entering a giveaway, breaks this rule. Nobody would enter if it did not encourage users through reward. It's not guaranteed, but neither are any other types of things being flagged as "bad" vs "good".

If anybody wants to continue this thread/post, I will be more than happy to allow such a thing.

I will win. But. I can't do this... not right now. Please keep it alive in your hearts and minds - and spread awareness to others!
We are saving lives. This isn't a joke, or something fun. It's real. The horrors of lyme are real.
Never... never... never ever knew... this could happen to me or anybody else for that matter. Please. Be grateful for your own health.

Live your life strong... and do things I cannot do. Please live life for me - where I couldn't be strong enough... you can! You will succeed! Be that person I wanted to be. The person I would have been, had I not gotten sick... as one of the healthiest people around before a damn tick destroyed me... at least up to now. One moment in time. It destroyed it all...

Please never forget your health... and how important it is. We only have one life. Don't waste your chances!

Please send me a message through steam if you wish to keep this going!



A friend of mine, JerichoOfRivia mentioned a while back that I should create a post about this on Steamgifts. I sort of considered, but I didn't know if I wanted to go through with the effort. I've decided to incorporate lots of giveaways into this and try to keep it bumped here and there when I can, and I hope some people will consider doing the same. It's a rather touchy and important issue, and I didn't know really how much I wanted to go into it, or what I would say. Here's what sprung from my mind, so I hope it will get my main point across without being too much about me, but it will be mainly about me, since I am one of many suffering from this disease with no cure.

Some of you already know this, since I mention it in comments here and there, but I have lyme. I was bitten by many many ticks when I was 11 and 12 years old, during the time of some experimentation being done on mycoplasma germs about 30 miles away. I also coincidentally happen to have a very debilitating form of mycoplasma. I told doctors I was sick for many years after my body started to tell me it wasn't well, but they did not believe me. I got progressively worse as time went on, starting with neurological symptoms, progressing to nerve sensations and pain, and then overwhelming fatigue. I was told it was in my head, or that it was all due to depression. Some doctors told me I had growing pains when I was still fairly young, and others blamed it on lack of exercise. Why would they even say that, when the whole reason I was complaining is because I could not do the things I used to do?

I used to run close to five minute miles, but now I'm lucky if I can even make it upright for five minutes on my really bad and fatiguing days. Running and doing other active things outside was sort of my downfall. If I had stayed inside leading an inactive lifestyle, I wouldn't have had nearly as many chances to get bitten by ticks. I started to lose faith and trust in all doctors, since they kept ignoring me when I told them I was sick, and as all the medical professionals I saw gaslighted me into that belief, I eventually believed I was imagining it all, that it really was in my head, so I gave up for a long time. Certain things helped me over the years, and other things seemed to help, but also caused me other problems. I am surprised I lived through this, and that I continue to be as strong as I am. I might just be lucky, since it hasn't yet attacked the places where it can with others, causing death within months to a few years.

I have over twenty various conditions, most chronic and some fully systemic. Some I can slow progression by taking supplements and other things, and most have no permanent cures. Some will take constant medication, and some can be prevented to a degree, or at least masked to some extent. There have been times where I've taken over 60 pills a day. On average I'm probably about half that right now. It's very hard to live like this, and when I was healthy, I never imagined a person could feel this way, even on my worst days, or in my worst nightmares.

When somebody asks me what it is like, I explain that it is like a constant flu most of the time, but instead of being able to sleep through it as a sick person would, and having it go away in a few days, it never ends. On top of that, I have to perform and function in life while I have the flu, unlike the people that get a lot of rest. They get better. I cannot rest twenty-four hours a day, and it's pointless to do that, since my muscles would only atrophy, and it's too painful to sleep for very long periods most of the time anyway. I have a lot more symptoms constantly barraging me aside from a simple flu, but I describe it this way, since most people know what the flu is like. The other stuff is a bit more difficult to get into with somebody healthy.

I have learned a lot about living on the other side of healthy that I would never have known, had I been treated properly. I think this disease and many others it causes are ignored so much because of the fact that nobody believes you are so sick, and most minds cannot comprehend something so devastating without actually having experienced such a thing, so they have a natural form of denial about it. Many people with lyme can do things at times, so on the outside they look fine for short periods of time. Other times when nobody sees them, it may be a different story. Many times the recovery period for doing the seemingly slightest things can be quite harsh. Other times I do a lot more, and it doesn't hurt me later. Most of the time I don't notice the hurt, because I already am hurting worse all over. It's not something somebody can ever see, like a missing arm or leg, for instance. The neurological effects are the same. Mental health is a sad thing to examine in today's world. I have test results of some things showing problems, like seizure disorders, but not very much evidence, since the brain is so complex. Most tech is very new, and hard to get to without large amounts of money. I found a place to work on some of my neurological things, perhaps, but it's over two hours away. My insurance is ignored by most doctors in the area that could help because I am on government assistance since I can't work. It is a form of discrimination that is ignored by my government.

I have only some tests that can show much of anything. Lyme tests are not very accurate. Probably well over half the tests give false negatives. Some people have gotten 10+ tests showing they have zero lyme, and they "suddenly" end up with a positive one. Also, many people do not get the "bullseye rashes", possibly as low as ten to twenty percent. I never got one that I noticed, but after many tick bites, my body started acting crazy, and I had three breakouts of strep in a single month, with full body rashes at 11 or 12 years old. I have gotten 3 or 4 lyme tests so far that are equivocal, and as close as you can be without an actually considered a positive result. I am probably too far into late stage lyme to get a pure positive result, since my antibodies are too busy to show up anymore on a high level, and the lyme learns to outsmart these tests over time, as has been proven in multiple studies and scientific tests, but I am being treated based on symptoms, and my close tests together.

I am one of many that gets toyed with by medicine on an unending quest to find out the truth. Doctors seem like they are useless many times, and will not help. It's really sad when people with that much power choose to not help you, and let you suffer. Some people can get away with almost anything though, and this is especially true of people with power over whether somebody lives or dies. In many cases, if they'd just drop the all-knowing ego a bit, listen to their patient, get into action, dig a little, offer choices, and maybe believe their patients, then a difference could be made for some of these people who are sick. I was not making doctor's appointments to have a fun time, and I don't think it should be put off so lightly.

People are probably sick if they have to call a doctor. Even in the rarest of incidents where they really are hypochondriacs, this is also a sickness that needs to be examined and treated if there really isn't anything wrong. Something in fact is wrong on some core level if they are looking for medicine to help them in some way. It's a cry for help no matter how you look at it. There is no reason to completely ignore human beings who are asking for help. That's what they are supposed to be there for. I guess some forget that along the way, or something. I don't really understand the lack of compassion for others. Some responsibility and accountability would be nice from people in these powerful positions. It's on them and their conscience though. I'm glad it's not me.

I consider myself and my situation a test for others. Will they do the right thing when they have a chance to offer me something, as a sick person? Will they ignore me, when they have a chance to be there for somebody in need? What would the spiritual people of the world do in these situations? Other creatures in the world, and other tribal settings accounted for the sick, and the rest of the group would look out for them and try to make them well.

I don't think the government wants me well here, to be honest. I make them far more money being sick and on the system, as a cash cow for Big Pharma, and whoever else is profiting. It is a win win for them if I struggle, because I have to either pay up, or I die. If I got better, I'd be a direct threat to their jobs, and that's dangerous when it's somebody who has been through hell already. We lose the apprehensions that healthier people tend to have, and we know what it's like to have nothing. Many times those kinds of people take less for granted, and can do a better job, since they don't want to go back to the way it was, being miserable and having next to nothing.

I know this is getting to be a long-winded post, but I want to raise awareness about third stage lyme, and that it can indeed become chronic and wreak havoc on your entire body. I think most if not all of my current conditions probably came from lyme, and I don't want other people to end up like me. There is very little I could think of that would be worse than living a lifetime with the pain, tiredness, torment, and expenses of dealing with problems like this. I cannot work because I am too sick, but I need to get better in order to work again, and so that's where the bulk of expenses comes from. It's a catch 22.

I'm also including all the years I could have had an income, and I did not. In society, they want you to work, but if you're too sick to work, then you must get better, but if you cannot pay for treatment, then you remain sick, unable to work. It is a vicious cycle, and yet another facet of medicine I will not get into. There are even organizations like IDSA, that say chronic lyme does not exist, and people in the medical profession think highly of this organization, and they believe this garbage. It's maddening that so many people are overlooked, and considered hypochondriacs, or mental, depressed, or whatever they want to mis-label so many people that are suffering.

Enough about me. Please remember a couple of things:
Also just a disclaimer of sorts that I am no expert on removing ticks!
The information is what I've come to believe in my own experience based on the sources I read and trust most. There isn't a lot to go on with ticks/lyme.

  • There is a lot of bad information out there about how to remove ticks. One way that most people have access to is a pair of tweezers close to the skin, and a steady pull directly away from your body, without crushing, jerking or twisting, is best . If it's too fast or hard, you can leave the mouth parts embedded under the skin. A distressed tick can also regurgitate a lot of dangerous disease-causing germs into you if you try to use other methods to remove them, like suffocation or burning.

  • If you, a pet, or somebody you know gets tick bites, try to get treated with antibiotics as soon as you can. Push for at least 4 weeks, if possible as well. If your doctor will not get you at least 4 weeks of some doxycycline antibiotic by choice, find another doctor. I guess different areas have rules. I would check the rules for my area, and get the largest amount of treatment I could as early as possible. This can ruin your entire life. Not something to take lightly.

  • It's one of the most underfunded medical problems in my country, yet as many as 300,000 new cases spring up each year.

A quote from lymediseasechallenge.org says, "Although the number of new Lyme cases annually is staggering, there is relatively very meager support for research funding. Indeed, although the annual incidence of Lyme Disease is higher than that of breast cancer, hepatitis, colon cancer, Multiple Sclerosis, HIV/AIDS and West Nile virus in the United States, unfortunately federal funding of Lyme Disease has been extremely disproportionate. For example, Lyme Disease occurs 6 times more often annually than HIV/AIDS, yet it receives less than 1% of the funding from the National Institutes of Health compared to HIV/AIDS. Likewise, there are 141 times as many cases of Lyme Disease than West Nile virus, yet Lyme Disease receives less than half of the funding for research."

There is a lot of good information out there, and a lot of misinformation as well. There are organizations like ILADS, that I think come closer to the truth about lyme disease.

Please consider adding Lyme Disease Association to your charity list if you use HumbleBundle, Amazon (AmazonSmile), or other places you may have an option to donate to for charitable causes, if you don't really have a particular charity you are set on using. About 96% of all money that is donated here goes to causes that help spread more information and education on lyme, as well as other important missions, including finding lyme doctors for people, since a lot of lyme doctors try to stay under the radar in fear of being prosecuted for helping people with lyme. Hopefully it's okay for me to mention that, but if not I'm okay removing the organization.

Unfortunately, according to many states here, and their rules, things like Lyme shouldn't be treated with long-term antibiotics, but having acne is a different story, and long-term treatment of acne with antibiotics is okay. Doctors in many states trying to give antibiotics long-term for lyme have had their licenses revoked, and some have been jailed. It's very bad in some other countries as well, such as Australia. Just an example here, but there's something deeply corruptive at work here in the USA with double standards like the mentioned one above. Lyme can and will kill, while acne is more cosmetic. Anyway, the above mentioned charity is located in the town where my lyme doctor practices too, Jackson, New Jersey.

I found out I had lyme disease after living with my problems for over twenty years. I now have a real diagnosis. I feel liberated.


Please bump for:

  • The generosity of myself and others, and awareness of lyme!

  • Good karma!

  • Your own conscience, health and well-being!

  • To make me happy to add current giveaways!

  • To increase the likelihood of me adding even more giveaways at a more frequent pace!

  • High non-bundle giveaway chances in the future if it can get enough activity! So far not so good on the bump % - still dropping one or two non-bundles every now and then... but the % of joins vs. bumps just ain't up to snuff. Sorry, but it's kinda expensive, so just a small effort would be appreciated if you take the time to join something. Rude otherwise, IMO.

If you're feeling generous and would like to make a giveaway, this format below is awesomely appreciated!

[Superfabs Is the BEST EVER! - Level x+](http://www.steamgifts.com/giveaway/MaR10/MUSHROOMS) | your contributor name

GIVEAWAYS: (I will update this regularly, if I can, but I mainly wanted to express awareness unless something catches on).

*Let me know if you notice something that's already expired, and I'll remove, since I may not notice right away!


Thanks to D3D for this one!

Abalone (ends 1/1)

Thanks to Corran for these!

Beholder - Level 3

[Sniper Elite V2 - Level 3]](https://www.steamgifts.com/giveaway/36k15/)

Resident Evil Revelations - Level 3

Thanks to dubnio for these!

RUNNING WITH RIFLES - Level 4+

Seasons after Fall - Level 4+

Jalopy - Level 4+

Super Mega Baseball: Extra Innings - Level 4+

Jet Racing Extreme - Level 4+

SAMOLIOTIK - Level 4+

Loot Hero DX - Level 4+

Tap Heroes - Level 4+

No Turning Back: The Pixel Art Action-Adventure Roguelike - Level 4+

Lead and Gold - Gangs of the Wild West - Level 4+

Gunspell: Steam Edition - Level 4+

Thanks to insideone for these!

Scrollonoid - Level 3+ | insideone

HEXOPODS - Level 3+ | insideone

Dead Dust - Level 3+ | insideone

Purgatory II - Level 3+ | insideone

Lantern of Worlds - Level 3+ | insideone

Super Blasting Boy - Level 3+ | insideone

Thanks to Kyrrelin for this one!

Punch Club

Thanks to Vee79 for this one!

Galactic Fighters - Level 1+

Thanks to Zorskan for these!

Rise & Shine

Pinstripe


Thanks for all of the support!
LET'S KEEP THE AWARENESS ALIVE!! THAT'S WHAT THIS IS ALL ABOUT! PLEASE COME BACK TO BUMP HERE AND THERE

8 years ago*

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The last one is over.
New one :

[The Flame in the Flood - Leve 4+](http://www.sgtools.info/giveaways/7c7ed323-ceec-11e7-b317-fa163ee2f826)
7 years ago
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Thanks for the format, and another giveaway here! I'll swap it out. Very nice of you to give another one in honor of lyme awareness!

7 years ago
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bump it up

7 years ago
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Thanks very much!

7 years ago
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Coming back to bump, here and there, once again \o/

7 years ago
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I appreciate it!

7 years ago
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Bump. Thanks.

7 years ago
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Thanks a lot!

7 years ago
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Bump :3

7 years ago
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I appreciate it!

7 years ago
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View attached image.
7 years ago
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That sign... More road work, perhaps?

7 years ago
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More bumps. ;-)

6 years ago
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Bump! I've set the LDA as my HB charity. :)

7 years ago
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Thanks a lot for the charity help! Just a single .01 added sometime is .01 more than they would have had. Since it is fairly local to my area, and I like their causes, I thought it is worth mentioning as an overall good kind of charity for anyone undecided. Happy to hear you're going to give them some support though!

7 years ago
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Bump

7 years ago
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Thanks a bunch!

7 years ago
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And another bump!
Check yourself for ticks when you went out, people! Because preventing is easier than curing

7 years ago
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Yeah, both of these things are good to remember. Thanks!

6 years ago
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quick bump before sleep. 💤🛌

7 years ago
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Thank you!

6 years ago
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Bumping.

7 years ago
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I am grateful for the bump!

6 years ago
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My mom had Lyme Disease from a spider that bit her on the hand when she was carrying some wood. It had been infected probably from a tick. The wound didn't heal and luckily the doctor she saw caught it early. It's a scary disease. Have my bump.

7 years ago
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Wow, that is a weird one. I don't think I have heard of a spider, but it makes as much sense as any of the other biting creatures that seem like they could be carrying it. They found the lyme in a test, or that seemed to be what could fit best based on all information? I hope no problems showed after the fact.

6 years ago
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Bump

7 years ago
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Thanks a bunch!

6 years ago
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🆙 ✔️

7 years ago
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Catching back up after the weekend, which I didn't do a whole lot during. Pretty good week/weekend overall for you?

6 years ago
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Yes, pretty good except for the weather. it was cold and a lot of hail and rain. But inside it was nice and warm. :-)

6 years ago
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I think of the modern aspect a lot, and I am often grateful we have such easy ways to create change temperatures today!! It must've been very challenging at times for people back in the day when the weather got very hot or cold. Can't even imagine... That has to be one of the more grueling aspects of not having a place to live, dodging the heat or cold. I'm kinda on the fringe, but at least for now I can just play survivalist games if I want, and my life has not completely become one.

Oh yeah, and my rash returned yesterday, so it's really getting red today all over. It's sorta all over the place, but it actually has specific patterns too, sort of predictable where it'll travel and how it'll move every time now since I am used to it. Where it will show up next time, and where it usually begins at. Weird how it works with no rhyme or reason, and dermatologists seem completely stumped. One seemed to think it could be somehow related to my pressure urticaria, since I have the response already for certain things, and it's not quite the same, but I suppose if something weird is going on inside, it could induce the urticaria reaction? In a way I am glad, since it gave me something clearly visual to show doctors so they took it seriously. Severity can vary a lot, but I've had some very nasty ones from time to time.

I'd like to return to that place sometime and try to follow up about that possibility soon here. More important things have been taking priority. I guess the dermatologist's idea about it having to do with the pressure urticaria is not too far fetched, since all that stuff is kind of vascular in nature. I wonder also about my low antibodies to many forms of strep, since that can cause rashes. I think the urticaria I get is histamine-related, but through pressure and repetitive motions in certain spots. I take some medication called hydroxyzine that can help it a tiny bit, but I am not certain how much it really works. To take enough to completely help the urticaria reaction, I think the sleepy side-effects would knock me out well before I got to that point! Good to take some before I do an activity that could cause it though, or noticing earlier sometimes helps if I'm going to take anything for it.

6 years ago
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Bump!

7 years ago
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Thank you kindly, VozoV!

6 years ago
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back from work bump 👍 😀

7 years ago
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Thanks! Monday... almost the same time. Hm.. could be that time again possibly.

6 years ago
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Pre sleep bump :)

7 years ago
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Thanks! Good weekend I hope.

6 years ago
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Bump. Hope you have a good weekend. :)

7 years ago
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Thank you, and I wish you the same. I didn't do much, but I did not feel especially bad, so overall I will take it.

6 years ago
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Bump :3

View attached image.
7 years ago
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It reminded me instantly, and I'd love to watch some cat basketball sometime if people can get cats to learn from them ever. I think the cats think they are training humans instead. Then there is this guy...

View attached image.
6 years ago
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I used to play football with my cat, and he was an excellent goalkeeper ^^ I guess he couldn't resist the urge to sabotage every single pass.
And then this guy... At least he tried :p

6 years ago
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Bump! :3

7 years ago
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Thank you very much!

6 years ago
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You're so welcome! ^^

6 years ago
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My giveaway has ended.
Zorskan's and igel2005's giveaways have ended.

7 years ago*
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I appreciate the bumps! I got this a little bit the other day, but did not get to my messages fully. Thanks again for giving me a heads up since I haven't checked!

6 years ago
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weekend bump! ✔

7 years ago
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I'm here! Thanks! Hoping it was a pretty okay one.

6 years ago
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View attached image.
7 years ago
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Well, they could always redo it maybe. Or not. People with dyslexia might actually appreciate it finally being spelled correctly.

6 years ago
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EDIT: Scrap that normal bump, I'll share a personal story:
Earlier this year, my grandmother had lost consciousness while in the bathroom and fell, and hit her head. My grandfather had found her lying there.
At first he feared the worst, but she was still alive. Luckily only a nasty bruise.
They went to see a doctor, since she shouldn't have lost consciousness.
Some examination later, she turned out to have Lyme disease, probably from an unnoticed tick bite somewhere between 3 and 12 months earlier.
She got treatment, but the tiredness and other complaints remain, as it's difficult to treat Lyme.

7 years ago*
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And something I just noticed in the OP

If you, a pet, or somebody you know gets tick bites, try to get treated with antibiotics as soon as you can. Push for at least 4 weeks, if possible as well. If your doctor will not get you at least 4 weeks of some doxycycline antibiotic by choice, find another doctor. I guess different areas have rules. I would check the rules for my area, and get the largest amount of treatment I could as early as possible. This can ruin your entire life. Not something to take lightly.

Yes and no:
Yes, you should give it attention, and let your general practitioner or other doctor(s) know.
Yes, you should make an appointment as soon as (the sleightest of) symptoms or abnormalities appear.
No, you should not immediately get antibiotics, and certainly not 4 weeks. This, because It'll only weaken your immune system, reduce effectiveness of the antibiotics, and even increase the immunity of the bacteria against the antibiotics. Meaning that, if we would do this, it would work against us, as we and our medicines grow weaker and the disease grows stronger

7 years ago
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As odd as it might sound, I'm kinda in agreement right now, since there simply is no better treatment than the antibiotics. Antibiotics are definitely dangerous - straight up poisonous for your body, and I guess that's why there is a lot of doctors on opposing sides about how to exactly treat Lyme, if in does exist in the first place, since for some it does not, or there is no chronic form, etc.

I basically will not take steroids because of the exact reasons you mention, so it is hard to really know what to do in the case of antibiotics. I can only go by what I have personally seen help or work for multiple people and bring them back from basically death. One's still really bad off, but they couldn't walk, and would not get out of bed most days. Another had Bell's Palsy and was quite ill constantly from Babs, and got better after treating Babesia and Lyme with antibiotics (this one could have been from either the Babs or Lyme, and either antibiotic may have helped, or it may have been other things that happened in either of these cases). I'm sure there are plenty of safer and better ways - I think the antibiotics should be an option somebody really thinks about before undertaking, if they had the option. Sort of a last ditch effort when nothing else seems to work for chronic sufferers.

It's impossible to know about the ones that got bit, had a rash or whatever, then got treated within about a week of the bite. I can't see how they would be without antibiotics early in treatment, since obviously they decided to go for antibiotics. There are also issues like biofilms to worry about, and antibiotics cannot even touch these (I think they need to be like... 1000x more powerful to do so out of what I read some years ago). So yeah, maybe not a good idea, but personally it is hard to say. Then of course there's always that risk of creating some kinds of resistant bacteria you weren't even focusing on. That's never a good thing either. I guess if the Lyme itself were not resistant, the treatment might be a better option, but it is a complete gamble for desperate people in the chronic case. Now, I wish I had insisted on more treatment and I would have liked to at least try antibiotic intervention early on if I had another shot at those times.

Can't say if it would have even helped or changed anything... If there is a safer way that could work before trying antibiotics, I'm all for it. Only problem is there are no real options out there for people yet. Maybe some more studying can find better ways to eliminate the germ, and not cause as much risk to the person or others indirectly if antibiotics don't want to work on other germs. I guess that is my issue with prescribing them here in this country for some problems that are not even close to being what one might consider life and death while more non-antibiotic, short-term, not really risky or superficial problems are getting prescribed by doctors without a single piece of evidence what they are using the antibiotics to treat is in fact even a bacteria. Just one example here: they can and will put people on antibiotics for years just for acne in their teens, which I can relate to, since I was a teen once, but it decreases for a lot of us with more time and growth. Another is the "bronchitis/colds" type of prescribing... Somebody has a slight cough or sore throat, they go to the doctor, and then take 3 or 4 days worth of antibiotics! Bronchitis is almost always a virus, not a bacteria. I think the numbers are heavily in favor, 90%+ odds or something like that. I feel that stuff like that is probably worse for the whole "resistant bacteria" conundrum. Hard to know how to solve some of these things, if there are better ways.

I think the lyme knocked my system out right off though, allowing the other coinfections to hit me. Theory, since I only have blood tests that are years later. I could have gotten the other problems at any time from anything. The tick stuff makes the most sense. Would following an early 90's prevention/awareness/treatment plan against lyme helped? Maybe. I would have been more careful of ticks though now that I know what it feels like. I think I also had that attitude a lot of people have like it won't happen to me. I also did not know much about the problem from education or anything at that time. A lot of problems of today were invisible then for whatever reason.

Hopefully it makes sense on my own view. Yours totally makes sense about antibiotics, and has been something I thought about even with my own treatment... especially spending years on antibiotics without breaks. I haven't really looked over any actual material on this particular issue, but it sounds exactly like that is what would happen. Maybe just trying to Then there are possible Herxheimer reactions and other complications. Feels like the public should know how to treat this better. Feels like another round of the Tuskegee Syphilis experiments though... basically the same type of germ, a spirochete. Then you have the public and doctors as well as patients that should have more facts, but nobody knows what is true or false these days.

The day somebody finds a better method is the day I will disagree with antibiotic treatment. Medicine needs to offer people something though... even if it is less than ideal, or just kill us off outright and end our suffering, proving some people in the world actually do have some compassion left.

6 years ago*
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Wow, I knew healthcare was not great in the States, but I didn't know it was that bad about antibiotics.
That would definitely explain your view.

I live in the Netherlands, and they have launched cmaapaigns about antibiotic awareness, because people would indepoendently (without doctor's prescription) take antibiotics, usually in wrong dosage or even expired pills, for things such as a flu, which is a virus.
The doctors are luckily quite strict, the minimal amount necessary, but enough to be certain it's gone.

I've had rhinitis, sinusitis, throat and ear infections regularly, at least one of them every year. Most of them bacterial, so I got antibiotics, but for the occasional viral one my doctor said: "Take some painkillers, and take some rest, it'll be over in a week." since that's about all they can and have to do.

So yes, get antibiotics for Lyme, since it is bacterial, but always visit a doctor, and get your checkups
And chronic antibiotics sucks, more research is indeed needed on Lyme disease and proper treatment of it.

6 years ago
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Yeah. I'd rather do a shorter term amount of IV and just give it a go for a little bit, but it's way out of my budget, and my insurance will not cover something like that, especially with lyme being so unrecognized. I am surprised they are allowing what they are with me and the years of multiple antibiotics I've worked with just in hopes of maybe hitting the mycoplasma or lyme, and then relieving me of a little of some symptom or another, which would be great. Small steps though for now. I will wait until maybe it's recognized better perhaps. Not many doctors will touch anything dealing with lyme though outside of areas where it's common.

I don't quite understand the huge bias, but I think several doctors have lost their licenses or gotten fined or arrested in certain parts of the US for prescribing antibiotics to lyme patients. It isn't standard procedure, but then again, what really is if you seem to be stuck with it over the long haul? I have seen some stuff out there even calling it "normal everyday aches and pains" or something crazy like that. Different organizations or corporations trying to sweep it under the rug here.

There was even a lab testing germ warfare, Plum Island, and there were numerous safety violations and abuses going on in that place while it was operational. They were dealing with all sorts of viruses though... would be easy for, say, West Nile or Lyme, to sneak out. I kind of thought so for a while just knowing about the place. Then I read a book about it with a lot of credible sources called Lab 257 and it was a fantastic read with all the ties it had to military operations and bioweapons creation. There are many others all over the planet though, and it's not just the old monster (luckily it is no longer operational). Probably something else going on somewhere else anyway. No way to know unless you actually are right in the middle of it usually. Even then several people can have entirely different interpretations of the same sort of flow of events I suppose... Sometimes.

6 years ago
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Whoa... really strange how lyme can literally creep into our lives. I hope it can be dealt with in the most effective kinds of ways we have right now... but it is not easy to really know how to treat this stuff. What causes what, getting to the root of the problems and whatnot. Lots of similar underlying issues with pain and chronic fatigue-like stuff, or the neurological issues for example. My thoughts and prayers are with you all if that is okay. I have tried a lot of various herbals, pharmaceuticals and other things to try to help my own tired or fatigue stuff, but no luck so far with me. If you are ever looking for more suggestions out there, let me know. I might have a few leads on tiredness stuff. Very few pharma options that I am aware of that are regularly prescribed for tiredness though that I can think of offhand here...

7 years ago
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Thanks for the thoughts and prayers.
From what I heard, she is doing okay, not great, and the fatigue still remains.
Truth be told, my grandparents are a bit stubborn, so she didn't take a blood test after the antibiotics, which would check if the Lyme was still active...

6 years ago
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Ahh ^ Fatigue is nasty. At least I can still move around and get out of bed, so I consider myself more blessed than it could be, that is for sure.
Out of my own stuff, that would be the first symptom I'd pick to "throw away", most definitely! It really messes up about everything in life most days. I hope there are some things that help it a little bit... I cannot find much that really helps my own. Some stuff makes me feel better in general, but the fatigue is just kinda masked. Just knocking the fatigue by half and leaving all other problems exactly as they are would make a huge difference in my quality of life though.

6 years ago
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get better bump

7 years ago
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Thank you! Slow, but I believe it's happening!

6 years ago
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Closed 5 years ago by Zomby.