Dercum’s disease. Neuromyelitis Optica. Landau Kleffner Syndrome. Malakoplakia. These are all rare diseases that you probably have never heard of. For me personally, I had no idea what they were until I googled “rare diseases”. Some of these have cures. Some of them do not. Even though they are rare, that does not mean that they should be put ALL the way on the back burner. How do we find out more about them? This is what NORD provides:
“Research gives hope to rare disease patients and their families. Since 1989, NORD has administered a Research Program through which we provide grants that have resulted in numerous published advances and at least two FDA-approved therapies. NORD is also working with rare disease organizations to launch disease-specific registries to support research.
NORD pioneered Patient Assistance Programs in 1987 and we are the leader in patient-focused PAPs today. NORD programs include free drug, co-pay and premium assistance, travel/lodging assistance for clinical trials, and expanded or emergency access.
NORD provides information about rare diseases, patient organizations and other resources for patients and families. We also promote awareness of rare diseases among physicians and other medical professionals.”
To find out more, head here: https://rarediseases.org/about/what-we-do/programs-services/
Note: For every 8 entries, 1 cent will be given to the Rare Disease Foundation
To enter for your chance to win Astroneer, fill out the Do-Gooders Survey here: https://www.surveymonkey.com/r/K8LNGYZ
To enter for your chance to win either Injustice: Complete or Mortal Kombat: Complete join the Do-Gooders Gaming group: http://steamcommunity.com/groups/dogoodersgaming
Giveaways here: https://www.steamgifts.com/giveaway/l320i/mortal-kombat-komplete-edition
https://www.steamgifts.com/giveaway/oOFdY/injustice-gods-among-us-ultimate-edition
Disclaimer I have no ties to any of the video game developers, publishers nor charities
For more exclusive giveaways connect with DGG here:
Twitter: https://twitter.com/DoGoodersGaming
Facebook: https://www.facebook.com/dogoodersgaming
Reddit: https://www.reddit.com/r/DoGoodersGaming/
2,196 Comments - Last post 16 minutes ago by Gamy7
10 Comments - Last post 18 minutes ago by Gamy7
19 Comments - Last post 28 minutes ago by Wok
696 Comments - Last post 29 minutes ago by Wok
16,501 Comments - Last post 44 minutes ago by CommissarCiaphasCain
980 Comments - Last post 1 hour ago by MrTommy
34 Comments - Last post 1 hour ago by NmSG
20 Comments - Last post 1 minute ago by Bydofied
71 Comments - Last post 4 minutes ago by ayuinaba
43 Comments - Last post 12 minutes ago by Kirouse
8 Comments - Last post 1 hour ago by artion33
3,581 Comments - Last post 1 hour ago by pizurk
195 Comments - Last post 1 hour ago by MayoSlice
66 Comments - Last post 2 hours ago by charlbow
Thank you!!! :)
Comment has been collapsed.
THX!
Comment has been collapsed.
Top banana :)
Comment has been collapsed.
thanks for the chance
Comment has been collapsed.
Thanks
Comment has been collapsed.
Thanks. :D
Comment has been collapsed.
Thanks ! And great initiative for rare diseases awareness :)
Comment has been collapsed.
Thanks a lot.
Comment has been collapsed.
Thanks
Comment has been collapsed.
Thanks ;)
Comment has been collapsed.