Dercum’s disease. Neuromyelitis Optica. Landau Kleffner Syndrome. Malakoplakia. These are all rare diseases that you probably have never heard of. For me personally, I had no idea what they were until I googled “rare diseases”. Some of these have cures. Some of them do not. Even though they are rare, that does not mean that they should be put ALL the way on the back burner. How do we find out more about them? This is what NORD provides:
“Research gives hope to rare disease patients and their families. Since 1989, NORD has administered a Research Program through which we provide grants that have resulted in numerous published advances and at least two FDA-approved therapies. NORD is also working with rare disease organizations to launch disease-specific registries to support research.
NORD pioneered Patient Assistance Programs in 1987 and we are the leader in patient-focused PAPs today. NORD programs include free drug, co-pay and premium assistance, travel/lodging assistance for clinical trials, and expanded or emergency access.
NORD provides information about rare diseases, patient organizations and other resources for patients and families. We also promote awareness of rare diseases among physicians and other medical professionals.”
To find out more, head here: https://rarediseases.org/about/what-we-do/programs-services/
Note: For every 8 entries, 1 cent will be given to the Rare Disease Foundation
To enter for your chance to win Astroneer, fill out the Do-Gooders Survey here: https://www.surveymonkey.com/r/K8LNGYZ
To enter for your chance to win either Injustice: Complete or Mortal Kombat: Complete join the Do-Gooders Gaming group: http://steamcommunity.com/groups/dogoodersgaming
Giveaways here: https://www.steamgifts.com/giveaway/l320i/mortal-kombat-komplete-edition
https://www.steamgifts.com/giveaway/oOFdY/injustice-gods-among-us-ultimate-edition
Disclaimer I have no ties to any of the video game developers, publishers nor charities
For more exclusive giveaways connect with DGG here:
Twitter: https://twitter.com/DoGoodersGaming
Facebook: https://www.facebook.com/dogoodersgaming
Reddit: https://www.reddit.com/r/DoGoodersGaming/
55 Comments - Last post 14 minutes ago by Lugum
31 Comments - Last post 1 hour ago by slurredprey
450 Comments - Last post 5 hours ago by klingki
7 Comments - Last post 10 hours ago by xXSAFOXx
16,297 Comments - Last post 11 hours ago by SebastianCrenshaw
206 Comments - Last post 15 hours ago by Joey2741
31 Comments - Last post 16 hours ago by Pika8
3 Comments - Last post 2 minutes ago by Lprn
172 Comments - Last post 26 minutes ago by Fitz10024
54 Comments - Last post 27 minutes ago by MarvashMagalli
7,980 Comments - Last post 27 minutes ago by greddo
70 Comments - Last post 1 hour ago by Tucs
44 Comments - Last post 1 hour ago by Tucs
690 Comments - Last post 1 hour ago by Fitz10024
Thank you!!! :)
Comment has been collapsed.
THX!
Comment has been collapsed.
Top banana :)
Comment has been collapsed.
thanks for the chance
Comment has been collapsed.
Thanks
Comment has been collapsed.
Thanks. :D
Comment has been collapsed.
Thanks ! And great initiative for rare diseases awareness :)
Comment has been collapsed.
Thanks a lot.
Comment has been collapsed.
Thanks
Comment has been collapsed.
Thanks ;)
Comment has been collapsed.